Category Ranking
98%
Total Visits
921
Avg Visit Duration
2 minutes
Citations
20
Article Abstract
Download full-text PDF |
Source |
|---|---|
| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC11957473 | PMC |
| http://dx.doi.org/10.1159/000545038 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
The Experiences of Patients With Rare Diseases in Pennsylvania: A Community-Based Study.
Public Health Rep
September 2025
Department of Neurosurgery, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA.
Objective: Rare diseases collectively affect approximately 30 million people in the United States. Despite advances in genomic medicine, early diagnosis is challenging because of limited awareness of, accessibility to, and disparities in health care resources. We assessed the real-world experiences of patients with rare diseases in Pennsylvania and evaluated the effect of delayed diagnosis on psychosocial and financial burdens.
View Article and Find Full Text PDFDeveloping a collaborative network for cystic fibrosis in Africa: A call to action.
J Cyst Fibros
September 2025
Division of Paediatric Pulmonology; University of Cape Town, South Africa; Red Cross War Memorial Children's Hospital, Cape Town, South Africa.
Background: Cystic fibrosis (CF) is a genetic disorder that remains underrecognized across Africa, where limited diagnostic capacity, low awareness, and competing health priorities contribute to delayed or missed diagnoses [1-4]. Although increasing data suggests CF is more prevalent than previously believed in Africa, survival remains poor [1]. These challenges do not only affect people with CF (pwCF) in Africa but also have implications for global understanding of the disease, particularly among populations historically excluded from CF research and treatment advances.
View Article and Find Full Text PDFHousing Instability and Homelessness in Pediatrics: A Narrative Review of Health Impacts and Multi-level Interventions.
Acad Pediatr
September 2025
Department of Pediatrics, University of Minnesota, Minneapolis, MN.
Safe and stable housing is foundational for child and adolescent health; likewise, housing instability and homelessness are associated with significant pediatric health risk. This narrative review sought to: (1) describe the impact of stable housing, housing instability, and homelessness on child and adolescent health, and (2) explore advocacy interventions for pediatricians to support unstably housed children, youth and families. While the relationship between health and housing is complex, here, we describe three primary mechanisms through which housing impacts pediatric health.
View Article and Find Full Text PDFThe professional experience of rural midwifery in China during the transition from traditional to modern birth practices (1950s-1970s): A qualitative study.
Women Birth
September 2025
Department of nursing, Women's Hospital School of Medicine, Zhejiang University, Hangzhou, Zhejiang, China. Electronic address:
Background: Although home births have been largely discontinued in contemporary China, traditional birth attendants (TBAs) historically played a pivotal role in enhancing maternal and child health, particularly in rural areas.
Aim: This study explored the transformation of TBAs in China from the 1950s to the 1970s, focusing on their gradual shift from traditional to modern midwifery practices. By drawing on oral histories from TBAs, the research seeks to enrich the historical understanding of midwifery development in China.
Ghanaian radiographers' perspectives on participating in preliminary image evaluation: A qualitative study.
J Med Imaging Radiat Sci
September 2025
Department of Medical Imaging, University of Health and Allied Sciences, Ho, Ghana.
Introduction: Radiographers in low-resource settings like Ghana often operate in environments with limited access to radiologists, resulting in informal involvement in image interpretation tasks despite a lack of formal recognition or training. Preliminary Image Evaluation (PIE), where radiographers provide initial comments on X-ray images have been successfully implemented in other countries. This study explored the perspectives of Ghanaian radiographers on PIE involvement.
View Article and Find Full Text PDF