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Psychosocial interventions for pediatric chronic illness (CI) have been shown to support health management. Interventions that include a family systems approach offer potentially stronger and more sustainable improvements. This study explores the biopsychosocial benefits of a novel family systems psychosocial intervention (MEND: Mastering Each New Direction). Forty-five families participated in a 21-session intensive outpatient family systems-based program for pediatric CI. Within this single arm design, families were measured on five domains of Health-Related Quality of Life (HRQL) self-report measures; Stress, Cognitive Functioning, Mental Health, Child HRQL, Family Functioning. Both survey and biological measures (stress: catecholamine) were used in the study. Results from multivariate general linear models showed positive pre-, post-, and 3-month posteffects in all five domains. The program effects ranged from small to moderate (η = .07-.64). The largest program effects were seen in the domains of cognitive functioning (η = .64) and stress (η = .27). Also, between disease groups, differences are noted and future implications for research and clinical practice are discussed. Conclusions suggest that the MEND program may be useful in helping families manage pediatric chronic illnesses. Study results also add to the growing body of literature suggesting that psychosocial interventions for pediatric chronic illness benefit from a family systems level of intervention.
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http://dx.doi.org/10.1111/famp.12288 | DOI Listing |
Front Rehabil Sci
August 2025
Department of Neurosurgery, David Geffen School of Medicine, University of California, Los Angeles, CA, United States.
Introduction: Spinal cord injury (SCI) presents a significant burden to patients, families, and the healthcare system. The ability to accurately predict functional outcomes for SCI patients is essential for optimizing rehabilitation strategies, guiding patient and family decision making, and improving patient care.
Methods: We conducted a retrospective analysis of 589 SCI patients admitted to a single acute rehabilitation facility and used the dataset to train advanced machine learning algorithms to predict patients' rehabilitation outcomes.
J Healthc Sci Humanit
January 2024
Nursing Student, Tuskegee University School of Nursing, Bioethics Honors Program.
This personal narrative recounts the experience of a nursing student, Sonia Sweat, and her family as they battled COVID-19 in 2020. After Sonia fell ill, her husband Jason followed suit, and his condition quickly deteriorated. Despite her efforts to care for him at home, Jason was eventually hospitalized and placed in the ICU, battling severe complications.
View Article and Find Full Text PDFChild Prot Pract
April 2025
Division of Violence Prevention, National Center for Injury Prevention and Control, Centers for Disease Control and Prevention, Atlanta, GA, USA.
Introduction: In the U.S., child abuse and neglect (CAN) is a significant public health problem.
View Article and Find Full Text PDFFront Psychol
August 2025
Department of Work and Social Psychology, Fontys University of Applied Sciences, Eindhoven, Netherlands.
Background: Psychosocial disability (PSD) refers to the limitations experienced by persons with mental illness (PWMI) in interacting with their social environment. Persons with psychosocial disabilities (PPSD) face significant barriers to accessing sexual and reproductive health (SRH) services due to structural and institutional barriers. Despite commitments under the Convention on the Rights of Persons with Disabilities (CRPD), there are persistent rights violations and denial of PPSD to exercise their rights and access services related to SRH care.
View Article and Find Full Text PDFFront Public Health
September 2025
Department of Medicine, University of Chicago, Chicago, IL, United States.
Background: Achieving Equity in Patient Outcome Reporting for Timely Assessments of Life with HIV and Substance Use (ePORTAL HIV-S) is a research project funded by the National Institute for Drug Abuse to implement and evaluate multi-level interventions to decrease barriers to substance use screening and treatment for PLWH. At its center is a multidomain intervention addressing digital, sociocultural, and health care system environments, at individual, interpersonal, and community levels. ePORTAL HIV-S has four overall goals; this manuscript describes the protocol specifically for the randomized control trial (RCT) portion of the study.
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