Category Ranking
98%
Total Visits
921
Avg Visit Duration
2 minutes
Citations
20
Article Abstract
Caring for children and their families at the end-of-life is an essential but challenging aspect of care in the PICU. During and following a child's death, families often report a simultaneous need for protected privacy and ongoing supportive presence from staff. Balancing these seemingly paradoxical needs can be difficult for PICU staff and can often lead to the family feeling intruded upon or abandoned during their end-of-life experience. In this "Pediatric Critical Care Medicine Perspectives" piece, we reframe provision of privacy at the end-of-life in the PICU and describe an essential principle that aims to help the interprofessional PICU team simultaneously meet these two opposing family needs: "Supported Privacy." In addition, we offer concrete recommendations to actualize "Supported Privacy" in the PICU, focusing on environmental considerations, practical needs, and emotional responses. By incorporating the principles of "Supported Privacy" into end-of-life care practices, clinicians can support the delivery of high-quality care that meets the needs of children and families navigating the challenges and supports of end-of-life in the PICU.
Download full-text PDF |
Source |
|---|---|
| http://dx.doi.org/10.1097/PCC.0000000000003440 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Correlation between maternal serum uric acid, cystatin C, and coagulation indices during pregnancy and clinical features of early-onset pre-eclampsia and its prognostic analysis.
Blood Press Monit
September 2025
Baishan Maternal and Child Health and Family Planning Service Center, Baishan City, Jilin Province, China.
Objective: This study investigated the relationship of maternal serum uric acid, cystatin C (CysC), and coagulation indices [international normalized ratio (INR) and fibrinogen (FIB)] during pregnancy with clinical features and prognosis of early-onset pre-eclampsia.
Methods: Patients with pre-eclampsia (n = 133) were retrospectively selected, with clinical features and maternal uric acid, CysC, INR, and FIB levels collected. The relationship between clinical features and maternal uric acid, CysC, INR, and FIB was analyzed by Pearson's and Spearman's analyses.
Factors Associated With the Continuation of Breastfeeding Beyond 12 Months of Age in Brazilian Families.
J Paediatr Child Health
September 2025
Federal University of Juiz de Fora, Juiz de Fora, Brazil.
Aim: To measure the prevalence of BF amongst Brazilian children aged 12-24 months, assess associated social determinants and evaluate the impact of maternal knowledge about its benefits.
Methods: A cross-sectional study was conducted between September and December 2024, using an online questionnaire completed by Brazilian mothers with children aged 12-24 months. Sociodemographic data were collected, including maternal and child age, education level, marital status, ethnicity, household income and employment status.
Post-traumatic growth following the death of a parent from homicide: A reflective perspective from adulthood.
Death Stud
September 2025
Department of Psychology, University of Liverpool, Liverpool, UK.
Although there is considerable research into the impact of homicide on surviving family members, research is limited on subjective experiences of those who lost a parent due to homicide during childhood. Through interpretative phenomenological analysis, we conducted and analyzed in-depth semi-structured interviews, to explore lived experiences and perspectives of post-traumatic growth with adults who lost a parent due to homicide as a child. We developed five group experiential themes: 1.
View Article and Find Full Text PDFFacility dog intervention and young children's anxiety during outpatient echocardiography.
Cardiol Young
September 2025
Monroe Carell Jr Children's Hospital Vanderbilt, Nashville, TN, USA.
Background And Objectives: With more than 1 million children in the United States living with a heart defect or condition, it is important to identify interventions that may minimise the long-term impacts of repeated medical surveillance and care. Thus, the purpose of this quasi-experimental study was to examine relationships between facility dog intervention and young children's anxiety during outpatient echocardiogram.
Methods: Participants were seventy children aged 18 months to 8 years undergoing echocardiogram in a paediatric cardiology clinic.
PATJ deficiency leads to cystic kidney disease and related ciliopathies.
HGG Adv
September 2025
Department of Medicine IV, Faculty of Medicine, Medical Center-University of Freiburg, University of Freiburg, Freiburg, Germany; Medizinische Genetik Mainz, Limbach Genetics, Mainz, Germany. Electronic address:
Cystic kidney disease and related ciliopathies are caused by pathogenic variants in genes that commonly result in ciliary dysfunction. For a substantial number of individuals affected by those cilia-related diseases, the causative gene still remains unknown. Using massively parallel sequencing, we here identified a pathogenic bi-allelic variant in the gene encoding PALS1-Associated Tight Junction Protein (PATJ; also known as Inactivation-No-Afterpotential D-Like, INADL) in an individual with ciliopathy.
View Article and Find Full Text PDF