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Background: As the global prevalence of dementia rises, care costs impose a large burden on healthcare systems. Technology solutions in dementia care have the potential to ease this burden. While policies exist to guide and govern the use of dementia care technologies, little is known about how ethical considerations are incorporated into these documents.
Objective: The goal of this study was to examine ethics-related content in dementia care technology policies.
Methods: We used a two-step data mining approach to collect a sample of dementia technology policies. Policy documents were analyzed using emergent content analysis. Following the coding of the sample, thematic categories were organized using the principles of biomedical ethics as a framework.
Results: A total of 23 policy documents from four Alzheimer associations in four countries were included in our analysis. General ethics considerations and themes related to beneficence were mentioned in 96% of the documents. Thematic categories related to justice were present in 74% of the sample, themes related to non-maleficence appeared in 52% of documents, and themes related to autonomy appeared in 43% of the sample.
Conclusion: While ethical considerations are present in existing policies for dementia care technology, these considerations revolve primarily around the benefit of the technologies. Further efforts are needed to provide formal guidance that incorporates both benefits and potential harms.
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http://dx.doi.org/10.3233/JAD-180938 | DOI Listing |
Palliat Care Soc Pract
September 2025
Faculty of Health, University of Technology Sydney, Ultimo, NSW, Australia.
Background: Despite high mortality rates in long-term care (LTC), LTC homes continue to struggle to implement a palliative approach to care.
Objectives: The objective of this research was to implement and evaluate the Strengthening a Palliative Approach in Long-Term Care (SPA-LTC; www.spaltc.
Alpha Psychiatry
August 2025
Department of Public Health and Primary Care, Leiden University Medical Centre, 2333 ZD Leiden, The Netherlands.
J Appl Res Intellect Disabil
September 2025
University College Dublin School of Psychology, Dublin, Ireland.
Background: Most adults with Down syndrome develop Alzheimer's disease (AD) pathology in their 30s, yet research into cognitive health programmes for this group remains limited.
Method: A mixed-methods feasibility randomised control trial (RCT) evaluated an adapted, manualised group-based cognitive stimulation therapy (CST) programme for adults with Down syndrome (N = 12; M = 30) without dementia. Participants were randomly assigned to CST (n = 6) or control (services as usual; n = 6), with assessments at baseline, post-programme, and four-month follow-up by a blinded researcher.
Scand J Caring Sci
September 2025
Namsos Hospital, Nord-Trøndelag Hospital Trust, Namsos, Norway.
Introduction: Frontotemporal dementia (FTD) is a neurodegenerative disease that often causes young-onset dementia and affects patients' behaviour and personality. Although FTD significantly burdens patients' family caregivers, their experiences with follow-up health care services remain poorly understood.
Aim: In our study, we explored how family caregivers of patients with FTD have experienced follow-up health care for FTD, particularly their involvement in, influence over and support received during the pre- and post-diagnostic stages.
Nurs Older People
September 2025
Lukka Care Homes, London, England.
Moving into a care home is a major life event, and for people with dementia and their families it can be particularly stressful and challenging. This article outlines how nurses working in care homes can support family carers of residents with dementia during the transition into the care home and throughout the person's stay. • Family carers may experience feelings of loss, guilt and loneliness when they relinquish care.
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