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Article Abstract
Objective: To determine barriers and facilitators to the uptake of findings from the Research in Arthritis in Canadian Children emphasizing Outcomes (ReACCh-Out) study into clinical care by pediatric rheumatologists (PR) and allied health professionals (AHP) caring for children with juvenile idiopathic arthritis (JIA) in Canada.
Methods: PR and AHP participated in this qualitative study through telephone interviews. Interview guides were developed using the Theoretical Domains Framework and focused on the use of information from the ReACCh-Out study in the practice of counseling patients and families. A directed content analysis approach was used for coding.
Results: Nineteen interviews (8 PR and 11 AHP) were completed. All PR had knowledge of the ReACCh-Out study. Three major themes were identified: (1) both groups are motivated to use information from research in clinical care; (2) volume and emotional effect of information on families are barriers; and (3) specific timepoints in care trigger providing this information. AHP had less knowledge of the ReACCh-Out study, did not feel it was their primary role to provide this information, and have a desire for more opportunity to participate in academic forums related to research.
Conclusion: We have described a comprehensive overview of the barriers and facilitators perceived by healthcare providers in the translation of knowledge from JIA research into use in clinical practice. These findings provide a foundation for the development of knowledge translation strategies in the care of children with JIA and other rheumatic diseases.
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Article Synopsis
- - The study used structural equation modeling to analyze factors affecting health-related quality of life (HRQoL) in children with Juvenile Idiopathic Arthritis (JIA), focusing on disease activity and treatment intensity as root causes influencing HRQoL.
- - Data was collected across five stages of disease progression, revealing that pain, functional impairments, and participation restrictions mediate the effects of disease activity on quality of life, while psychosocial factors mediate the impacts of treatment intensity.
- - The results highlight that while both disease activity and treatment intensity negatively affect HRQoL, the specific pathways and impacts differ, with models for remission stages not aligning with the collected data.