'Being a Good Parent' for Seriously Ill Children in Brazil: A Qualitative Semantic Analysis.

Background: Most studies on 'being a good parent' focus on North American populations, leaving a gap in understanding parents' cultural beliefs and definitions in other regions. Cultural values, societal norms and personal experiences shape these beliefs, influencing their caregiving roles and actions.

Aims: This qualitative study explored Brazilian parents' beliefs about being 'good parents' to seriously ill children in the paediatric intensive care unit (PICU) and examined parents' descriptions of healthcare professionals' behaviours that support them in this role.

Communication and health literacy in pediatric emergency: nursing team's perspective.

Objective: To analyze the nursing team's knowledge and perspectives on an educational process focusing on communication and health literacy in the context of a pediatric emergency.

Method: A qualitative study, based on participatory health research and the health literacy theoretical framework. The educational process was conducted in a pediatric emergency room between October and November 2021, with the participation of ten nurses and 28 nursing technicians.

Pain as an Adverse Event During Chemotherapy in Children with Acute Lymphoblastic Leukemia: A Cross-Sectional Nationwide Study.

IntroductionPain is a common adverse event of chemotherapy in pediatric oncology patients. Understanding pain's impact on these patients is essential for improving their quality of life and treatment outcomes. This short communication aims to describe the characteristics of pain in children with Acute Lymphoblastic Leukemia (ALL) and to explore its interactions with hospitalization duration and relapse, considering variables such as age, gender, and risk level.

Stress in Family Caregivers of Children with Chronic Health Conditions: A Case-Control Study.

Objectives: This study analyzed the stress experienced by family caregivers of children with special healthcare needs and identified associated factors.

Methods: A case-control study was conducted with the "cases" being caregivers of children with chronic conditions and the "controls" being caregivers of healthy children. Recruitment was carried out via social media and complemented by snowball sampling.

Family caregivers' needs for information on pediatric cystic fibrosis: A qualitative study.

Cystic fibrosis (CF) affects not just patients but also their families, highlighting the need for a comprehensive care approach. This descriptive qualitative study aimed to explore the informational needs of family caregivers of children with CF, focusing on how these needs can be addressed within a Patient and Family-Centered Care (PFCC) framework. The study was conducted at a public hospital in Brazil.

Nurses' beliefs in the care of newborns at the end of life in the neonatal intensive care unit.

Objective: To describe nurses' beliefs and attitudes related to care during the end-of-life process and death in a neonatal intensive care unit.

Method: Descriptive and qualitative study with nurses working in a neonatal intensive care unit who experienced care for newborns who died in these units. Data collection was carried out through recorded interviews that were analyzed following thematic analysis from the perspective of the Health Belief Model.

The Sleep Patterns of Children and Adolescents with Chronic Conditions and Their Families: An Integrative Literature Review.

Sleep is of vital necessity for health, and it has a restorative and protective function for children and adolescents with chronic conditions and their families. The purpose of this study was to identify the scientific production on sleep patterns in children and adolescents with chronic conditions and their families. This integrative review was conducted between March and June 2022 using the databases of MEDLINE, Web of Science, CINAHL and PsycINFO.

Fathers' Experiences of Caring for a Child with a Chronic Illness: A Systematic Review.

The prevalence of children living with chronic health conditions is increasing worldwide and can disrupt family roles, relationships, function, and parental involvement in family caregiving. The purpose of this systematic review was to explore fathers' experiences and involvement in caring for a child with a chronic condition. Systematic searches using seven databases were conducted.

Adolescents' understanding of chemotherapy-related adverse events: a concept elicitation study.

Objective: to document adolescents' understanding of chemotherapy-related core adverse events from the Pediatric Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events and thus begin the validation process of this tool's items with Brazilian adolescents.

Method: this is a prospective, qualitative study of concept elicitation. The participants were 17 adolescents aged 13-18 years and undergoing chemotherapy in three hospitals in São Paulo - SP, Brazil.

School reintegration of children and adolescents with chronic illness from the mothers' perspective: A qualitative study.

Introduction: The diagnosis of chronic illness in childhood implies frequent hospitalizations and, consequently, the interruption of school attendance. This study aimed to understand the process of school reintegration of children and adolescents with chronic illness from the mothers' perspective.

Method: A qualitative descriptive-exploratory study was conducted with mothers who experienced the process of school reintegration of their child or adolescent, aged between 8 and 17 years old, and diagnosed with chronic illness.

Parental psychosocial needs in Brazilian paediatric intensive care units.

Background: Having children admitted in the intensive care unit is a demanding experience for parents. They encounter several difficulties during this process, and it is important to properly identify their psychosocial needs for the health team to address appropriately.

Objective: The aim of the study is to identify the psychosocial needs encountered by parents of children in pediatric intensive care units in Brazil.

Management of chemotherapy-related symptoms in children and adolescents: family caregivers' perspectives.

Objective: To describe the chemotherapy-associated symptoms and the strategies used for their management from the perspective of pediatric cancer patients' family caregivers.

Methods: This is a descriptive study with qualitative data analysis. Data collection took place in a pediatric hospital, from December 2017 to December 2018, with family caregivers of pediatric patients undergoing chemotherapy.

Coronavirus infection and nursing care for children and adolescents with cancer.

Objective: Reflect on the implications of COVID-19 for the nursing care of pediatric oncology patients.

Methods: Theoretical and reflective essay, based on recent scientific publications and expert recommendations on the care of pediatric patients under cancer treatment in the context of the current pandemic.

Results: Reflected on the involvement of the pediatric population in general by COVID-19, the vulnerability of pediatric oncology patients to the complications of the disease and the likely challenges for their care.

Pain Experience, Physical Function, Pain Coping, and Catastrophizing in Children With Sickle Cell Disease Who Had Normal and Abnormal Sensory Patterns.

Context: Sickle cell disease (SCD) is associated with recurrent pain that could lead to abnormal sensory patterns (ASPs).

Objectives: The purpose of this study is to compare children with SCD who had normal sensory patterns (NSPs) and ASPs in pain experience, physical function, pain coping, and pain catastrophizing.

Methods: Children with quantitative sensory testing data were selected from a larger study that examined pain and symptoms in children with SCD.

The Experiences of Bereaved Parents After the Loss of a Child to Cancer: A Qualitative Metasynthesis.

This study aims to synthesize qualitative evidence about the bereavement experience of parents following the death of a child due to cancer. A qualitative metasynthesis was conducted from searching five databases. The search identified 650 articles that were independently assessed by two reviewers.

Transitional care to home in the perspective of parents of children with leukemia.

Objective: To describe the experiences of parents of children and adolescents with leukemia in regards to the transition from hospital care to home.

Method: A qualitative, descriptive study conducted with nine mothers and two fathers, in a pediatric public hospital. The data were collected through semi-structured interviews, from May 2017 to January 2017, organized in the software Atlas.

Parents' Participation in Managing Their Children's Postoperative Pain at Home: An Integrative Literature Review.

Objectives: This integrative review aimed to synthesize and critically evaluate the methodological quality of the evidence on parent's participation in managing their children's postoperative pain at home.

Design: Integrative review.

Data Sources: To locate relevant articles, two reviewers independently searched four electronic databases systematically using predefined inclusion and exclusion criteria.

The Theory of Unpleasant Symptoms in Pediatric Oncology Nursing: A Conceptual and Empirical Fit?

Symptom management knowledge is a priority for pediatric oncology nursing research. Theories and models can frame the studies of symptoms experienced during childhood cancer. This article describes and analyzes the middle-range theory, theory of unpleasant symptoms (TOUS), for its conceptual and empirical fit with pediatric oncology nursing based on its current use in adult oncology research and its limited use to date in pediatric oncology.

Interventions minimizing fatigue in children/adolescents with cancer: An integrative review.

Fatigue is among the most common, debilitating, and distressing symptoms associated with chronic condition in pediatric population. The purpose of this study was to identify non-pharmacological fatigue interventions in children and adolescents with cancer. For this, we carried out an integrative review of the literature from January 2000 to December 2016.

The Effect of Music on the Spirituality of Patients: A Systematic Review.

Purpose: Although some studies have suggested that music can positively affect physical and psychological variables, few have evaluated its effects on spirituality. This study aimed to evaluate the effects of musical interventions on the spirituality of patients, regardless of diagnoses.

Method: This was a systematic literature review that followed the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) recommendations conducted through a relevant search of terms in six databases (PubMed, Web of Science, CINAHL, PsycINFO, ScienceDirect, and LILACS) without temporal delimitation.

Childhood cancer: Impact on parents' marital dynamics.

Purpose: To explore and analyze how marital relationships are affected by the crisis generated by the diagnosis and intensive regimens required in the treatment of children with cancer.

Method: A descriptive study with a qualitative data analysis was conducted. In-depth individual interviews were carried out with 18 married biological parents of children with cancer.

Puppets as a strategy for communication with Brazilian children with cancer.

Children are considered competent social actors. Although they are able to express their opinions, they may have some difficulties in answering direct verbal questions, requiring researchers and health professionals to enter their world by using auxiliary resources for communication. This study presents the experience of using finger puppets as a playful strategy for improving interaction and communication with hospitalized children with cancer, aged seven to 12.