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Background: The training of lived experience researchers (LERs) for involvement in research design and conduct is a key principle to its success. However, little is known about what research methods training is acceptable and beneficial to novice LERs.
Methods: A training evaluation using a slightly modified version of the Training Acceptability Rating Scale (TARS), and a concluding stakeholder engagement workshop. Responses to the quantitative items were summarised using descriptive statistics, and qualitative responses were coded using content analysis.
Results/findings: The trainees rated the overall training favourably (median overall TARS = 54/63; median acceptability = 31/36; median perceived impact = 23/27), but there was slight variation between sessions. There were six qualitative themes: valued learning format; valuing research knowledge; valued the centring of lived experience; gaps in training provision; more lived experience research focussed; and consider further support of LERs.
Conclusions: The training was found to be acceptable and beneficial, with trainees particularly valuing lived experience facilitation, case studies and tailored content. Trainees suggested the training could be improved by addressing theoretical, existential and skills gaps, and by making it more lived experience research focussed throughout.
Patient Or Public Contribution: This training evaluation and engagement workshop project was developed and overseen by a long-term service user with lived experience of mental distress. The workshop topic guide was co-designed with four people with lived experience, who were also involved in data analysis and co-constructed the findings. Finally, this paper concludes with a commentary on this study provided by a trainee with lived experience.
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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC12392132 | PMC |
http://dx.doi.org/10.1111/hex.70362 | DOI Listing |
Scand J Psychol
September 2025
Faculty of Psychology, University of Akureyri, Akureyri, Iceland.
Living under the threat of natural disasters affects mental health. Natural disasters that are more likely to occur in a specific season represent a special case that is becoming more frequent with the consequences of climate change. Therefore, they deserve special attention regarding their potentially seasonal mental health implications.
View Article and Find Full Text PDFBr J Nurs
September 2025
Patient Advocate, Ostomy Triathlete.
Many people living with a stoma face challenges beyond their physical needs. Although stoma care products and services have advanced, significant gaps persist in national policies and equitable access. Current policies appear to prioritise cost savings over the wellbeing of people living with a stoma, not appreciating the expertise of specialist stoma care nurses (SSCNs) and the experience of people living with a stoma.
View Article and Find Full Text PDFJ Health Serv Res Policy
September 2025
Department of Health and Society, University of Toronto Scarborough, Toronto, ON, Canada.
ObjectivesTo (1) understand the challenges and benefits of providing pregnancy care to people with disabilities and (2) identify strategies to address challenges, from the perspectives of health care and social service providers and decision-makers.MethodsWe undertook a qualitative descriptive study in Ontario, Canada, of 31 health care and social service providers and decision-makers. Participants completed semi-structured interviews about their education, training, and clinical or administrative experience working with pregnant and/or parenting people with physical, sensory, and intellectual or developmental disabilities, including challenges and benefits in pregnancy care provision, programming, and policies, as well as their recommendations to improve care.
View Article and Find Full Text PDFHealth Expect
October 2025
Yorkshire Quality and Safety Research Group, Bradford Institute for Health Research, Bradford Teaching Hospitals NHS Foundation Trust, Bradford, UK.
Background: Older people face numerous challenges when managing multiple medicines. They are required to cope with complicated and changing medicines regimens and coordinate input from multiple health and social care professionals. When not well managed, medicines can cause harm, and older people are more susceptible to the impact of errors.
View Article and Find Full Text PDFAnat Sci Educ
September 2025
Human Anatomy, Vita-Salute San Raffaele University, Milan, Italy.
As emerging technologies reshape both the body and how we represent it, anatomical education stands at a threshold. Virtual dissection tools, AI-generated images, and immersive platforms are redefining how students learn anatomy, while real-world bodies are becoming hybridized through implants, neural interfaces, and bioengineered components. This Viewpoint explores what it means to teach human anatomy when the body is no longer entirely natural, and the image is no longer entirely real.
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