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Article Abstract

Objective: Adolescent Idiopathic Scoliosis (AIS) is a spinal deformity that can impact both physical and psychosocial well-being. Stigmatization, particularly during adolescence, may influence adherence to conservative treatment strategies, including exercise therapy. This study examines the relationship between scoliosis-related stigma and adherence to exercise therapy in AIS patients.

Methods: This cross-sectional study included 88 AIS patients (mean age: 14.8 ± 2.5 years; 77.3% female) who were receiving conservative treatment. Only patients enrolled in a physiotherapeutic scoliosis-specific exercise program as part of their routine follow-up were included. Exercise adherence was classified based on the frequency of weekly home exercise sessions and patients' self-reported regularity. Adherence was defined as exercising at least three days per week and rating adherence as 'Moderately regular,' 'Quite regular,' or 'Completely regular'. Scoliosis-related stigma was assessed using the Adolescent Idiopathic Scoliosis Stigma Assessment Scale (AIS-SAS). Statistical analyses included Mann-Whitney U tests, chi-square tests, and multivariate logistic regression.

Results: Exercise non-adherence was identified in 68.2% of patients. Non-adherent participants had significantly higher scoliosis-related stigma scores (median: 9.7 vs. 5.6, p = 0.014) and brace-related stigma scores (median: 40.0 vs. 25.0, p = 0.016). Patients receiving both bracing and exercise therapy reported higher scoliosis-related stigma scores than those receiving exercise alone (p = 0.004). Among patients receiving bracing, stigma scores were significantly higher in those who did not wear the brace for the recommended duration (p = 0.043 for scoliosis-related stigma, p = 0.019 for brace-related stigma). Multivariate logistic regression showed that both scoliosis-related stigma (p = 0.015, OR = 1.107) and brace treatment (p = 0.041, OR = 3.225) were significant predictors of non-adherence.

Conclusion: Perceived stigmatization may contribute to exercise non-adherence in adolescents with AIS. Increasing awareness and supportive interventions could enhance treatment success and quality of life. Longitudinal studies are needed to clarify causality and explore other psychosocial factors.

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http://dx.doi.org/10.1007/s00586-025-09240-xDOI Listing

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Objective: Adolescent Idiopathic Scoliosis (AIS) is a spinal deformity that can impact both physical and psychosocial well-being. Stigmatization, particularly during adolescence, may influence adherence to conservative treatment strategies, including exercise therapy. This study examines the relationship between scoliosis-related stigma and adherence to exercise therapy in AIS patients.

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Purpose: Stigma is the negative attitudes towards an illness or difference. The literature lacks detailed scales specifically addressing stigmatization in AIS. This study aimed to develop Adolescent Idiopathic Scoliosis Stigma Assessment Scale (AIS-SAS) to measure stigmatization in AIS patients.

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