Category Ranking
98%
Total Visits
921
Avg Visit Duration
2 minutes
Citations
20
Article Abstract
Background: Malignant neoplasms are among the most common causes of disease-related death in children. Long-term chemotherapy often requires a high degree of parental involvement. Family caregivers' preparedness and capacity are critical in reducing the burden of care and improving quality of life. This study looks to examine the impact of a family-centered empowerment model (FCEM)-based intervention on the caregiving capacity and preparedness of family caregivers.
Objective: This study aims to develop and evaluate an FCEM-based intervention to improve caregiving preparedness and capacity among family caregivers of children with malignant neoplasms. It also examines the potential effects of the intervention on self-efficacy and psychological outcomes, including depression, anxiety, and stress.
Methods: This quasi-experimental study focuses on caregivers of children with malignant neoplasms attending our hospital for the first time, implementing a 4-phase FCEM-based intervention program evaluated through questionnaires administered 3 days after admission and 3 days before discharge. Differences in caregiving preparedness, caregiving capacity, self-efficacy, and depression, anxiety, and stress scores will be assessed using independent and paired t tests, Mann-Whitney tests, and paired rank-sum tests for both within-group and between-group comparisons preintervention and postintervention.
Results: Recruitment will be conducted in 2 waves (control group: July to December 2025; intervention group: July to December 2026). It is expected that the intervention group will show significantly greater improvements in caregiving preparedness, caregiving capacity, and psychological well-being compared to the control group.
Conclusions: The findings of this study are expected to provide evidence for the development of structured family empowerment in pediatric oncology. In the future, expanding to multiple centers and conducting targeted surveys among caregivers of children with different cancer types would help validate and promote the effectiveness of family empowerment interventions.
Trial Registration: ClinicalTrials.gov NCT06810388; https://clinicaltrials.gov/study/NCT06810388.
International Registered Report Identifier (irrid): PRR1-10.2196/73304.
Download full-text PDF |
Source |
|---|---|
| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC12344386 | PMC |
| http://dx.doi.org/10.2196/73304 | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
Assessment of patient satisfaction with percutaneous coronary angioplasty and clinical care experience: a qualitative study.
Minerva Cardiol Angiol
September 2025
Division of Cardiology, Vito Fazzi Hospital, Lecce, Italy.
Background: In the face of numerous studies concerning the technical advances of percutaneous coronary intervention [PCI] and clinical outcomes, only a few studies focus on patients' lived experiences after PCI. This study aims to explore patients' lived experiences after PCI, both in clinical terms and in terms of their perception of their health status, functional capacity, and autonomy at home.
Methods: A qualitative phenomenological, individual, semi-structured survey was conducted on a sample of 18 patients undergoing PCI.
Exploring healthcare professionals' perceptions on implementing home hemodialysis and self-assisted hemodialysis: a qualitative explorative study.
Int Urol Nephrol
September 2025
Division of Nursing, Singapore General Hospital, Singapore, Singapore.
Objective: To explore healthcare professionals' perceptions on the implementation of home hemodialysis and self-assisted hemodialysis in Singapore and to identify the perceived barriers, facilitators, and actionable strategies for increasing uptake.
Methods: This is a qualitative explorative study based on semi-structured face-to-face interviews conducted with a multidisciplinary group of 12 healthcare professionals at an acute teaching hospital in Singapore. Thematic analysis was used for data analysis.
Analysis of factors influencing the burden on family caregivers of disabled older adults in Guangzhou.
Front Public Health
September 2025
Institute of Public Health, Guangzhou Center for Disease Control and Prevention, Guangzhou Medical University, Guangzhou, China.
Objective: This study aims to investigate the current status of disability among older adults and analyze factors influencing the burden on their family caregivers in southern China.
Methods: A cross-sectional survey was conducted among 334 pairs of disabled older adults (≥65 years) and their primary family caregivers across three districts in Guangzhou. Face-to-face interviews using standardized questionnaires assessed disability levels via the "Long-term Care Disability Level Assessment" scale and caregiver burden via the Zarit Burden Interview (ZBI) scale.
Navigating discriminatory requests and refusals of healthcare workers: A Canadian-based inpatient hospital algorithm.
Nurs Ethics
September 2025
Department of Clinical and Organizational Ethics, University Health Network, Toronto, ON, Canada.
BackgroundHealthcare workers are increasingly subject to violence, aggression, and discriminatory requests from patients and families, reflecting broader societal biases within healthcare settings. In response, some institutions have developed policies and decision-making tools to guide leaders in addressing these situations ethically, consistently, and in accordance with human rights obligations.AimThis paper describes the revision of a previously published Caregiver Preference Algorithm to guide healthcare leaders in managing discriminatory patient requests.
View Article and Find Full Text PDFGrief, Uncertainty and Community: A Qualitative Study on Parental Experiences of Paediatric Feeding Disorders and Feeding Tube Use in Singapore.
J Adv Nurs
September 2025
Alice Lee Centre for Nursing Studies, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore.
Aim: To explore the perceptions and experiences of parents caring for children with paediatric feeding disorders requiring feeding tubes (PFD-T).
Study Design: A descriptive qualitative approach was adopted in this study.
Methods: Using purposive sampling, 12 parents were recruited from paediatric inpatient wards and the outpatient paediatric feeding clinic at a tertiary public hospital in Singapore.