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Enhancing the generalizability of neuroimaging studies requires actively engaging participants from under-represented communities. This paper leverages qualitative data to outline participant-driven recommendations for incorporating under-represented populations in neuroimaging protocols. Thirty-one participants, who had participated in neuroimaging research or could be eligible for one as part of an ongoing longitudinal study, engaged in semi-structured one-on-one interviews (84 % under-represented ethnic-racial identities and low-income backgrounds). Through thematic analysis, we identified nine relevant research practices from participants' reports, highlighting aspects of their experience that they appreciated and suggestions for improvement: (1) forming a diverse research team comprising members with whom participants can interact as equals; (2) increasing accessibility to research by providing transportation and flexible scheduling; (3) providing family-oriented spaces; (4) enriching the campus visits to include optional on-campus activities to connect with the University; (5) developing safe strategies to accommodate participants with tattoos during the MRI; (6) incorporating engaging and interactive tasks during neuroimaging sessions; (7) providing small gifts, such as a picture of one's brain, in addition to financial compensation; (8) sharing research findings with the research participants; and (9) fostering long-term bidirectional relationships. The findings may be used to develop best practices for enhancing participant diversity in future neuroimaging studies.
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http://dx.doi.org/10.1016/j.dcn.2024.101474 | DOI Listing |
Soc Sci Med
July 2025
School of Law, Society, and Criminology, Centre for Criminology, Law and Justice, UNSW (Sydney), Australia. Electronic address:
Elderly Yi women living with HIV have long been caught between the burdens of family responsibilities and the constraints of local medical management policies, which should be considered. Based on an ethnographic study of these people in a mountainous region of southwestern China, this study employs the narrative disruption approach of Narcofeminism to examine their disease narratives and drug-related decisions-particularly their choice to discontinue medication-within the intersecting contexts of health, family duties, and ethnic medical policies. Our findings note that the decision to stop antiretroviral treatment is largely driven by shifting life meanings and expectancies.
View Article and Find Full Text PDFMalariaworld J
May 2025
Global Health Office, Faculty of Health Sciences, McMaster University, Main St. W, Hamilton, Ontario, Canada.
Background: Malaria remains a major global health challenge, disproportionately affecting pregnant women and children. In Nigeria, malaria in pregnancy contributes to 70.5% of maternal morbidity and 41.
View Article and Find Full Text PDFImplement Sci Commun
March 2025
Policylab and Clinical Futures, Children's Hospital of Philadelphia, 2716 South Street, Philadelphia, PA, 19146, USA.
Background: Qualitative methodologies offer a nuanced approach to understanding stakeholder perspectives, preferences, and context in implementation research. However, traditional qualitative data analysis can be time consuming and create barriers to responsive implementation of interventions. Rapid qualitative methods that yield timely, actionable results have emerged to expedite the evidence-to-practice gap, but often require all analysts to have implementation science expertise and resources for interview transcription.
View Article and Find Full Text PDFDev Cogn Neurosci
December 2024
Department of Psychology, University of Michigan, Ann Arbor, MI, United States; Survey Research Center, Institute for Social Research, University of Michigan, United States; Michigan Neuroscience Institute, University of Michigan, Ann Arbor, MI, United States; Department of Psychiatry, Universit
Enhancing the generalizability of neuroimaging studies requires actively engaging participants from under-represented communities. This paper leverages qualitative data to outline participant-driven recommendations for incorporating under-represented populations in neuroimaging protocols. Thirty-one participants, who had participated in neuroimaging research or could be eligible for one as part of an ongoing longitudinal study, engaged in semi-structured one-on-one interviews (84 % under-represented ethnic-racial identities and low-income backgrounds).
View Article and Find Full Text PDFJ Sex Res
October 2024
William James Center for Research, Department of Education and Psychology, University of Aveiro.
Asexuality is a sexual orientation centered around low or absent sexual attraction. Despite the growth of empirical scholarship on asexuality, laboratory sex research with asexual individuals remains significantly underutilized. As such, we conducted a qualitative survey aimed at examining asexual individuals' perceptions of laboratory sex research as well as their perspectives/experiences on participation.
View Article and Find Full Text PDF