Category Ranking
98%
Total Visits
921
Avg Visit Duration
2 minutes
Citations
20
Article Abstract
Background: Parent-reported experience measures are part of pediatric Quality of Care (QoC) assessments. However, existing measures were not developed for use across multiple healthcare settings or throughout the illness trajectory of seriously ill children. Formative work involving in-depth interviews with parents of children with serious illnesses generated 66 draft items describing key QoC processes. Our present aim is to develop a comprehensive parent-reported experience measure of QoC for children with serious illnesses and evaluate its content validity and feasibility.
Methods: For evaluating content validity, we conducted a three-round Delphi expert panel review with 24 multi-disciplinary experts. Next, we pre-tested the items and instructions with 12 parents via cognitive interviews to refine clarity and understandability. Finally, we pilot-tested the full measure with 30 parents using self-administered online surveys to finalize the structure and content.
Results: The Delphi expert panel review reached consensus on 68 items. Pre-testing with parents of seriously ill children led to consolidation of some items. Pilot-testing supported feasibility of the measure, resulting in a comprehensive measure comprising 56 process assessment items, categorized under ten subthemes and four themes: (1) Professional qualities of healthcare workers, (2) Supporting parent-caregivers, (3) Collaborative and holistic care, and (4) Efficient healthcare structures and standards. We named this measure the PaRental Experience with care for Children with serIOUS illnesses (PRECIOUS).
Conclusions: PRECIOUS is the first comprehensive measure and has the potential to standardize assessment of QoC for seriously ill children from parental perspectives. PRECIOUS allows for QoC process evaluation across contexts (such as geographic location or care setting), different healthcare workers, and over the illness trajectory for children suffering from a range of serious illnesses.
Download full-text PDF |
Source |
|---|---|
| http://www.ncbi.nlm.nih.gov/pmc/articles/PMC10921687 | PMC |
| http://dx.doi.org/10.1186/s12904-024-01401-x | DOI Listing |
Publication Analysis
Top Keywords
Similar Publications
From psychosis to creativity: a lived experience perspective on serious mental illness symptoms.
Neuropsychopharmacology
September 2025
Neuropsychopharmacology, .
Isolation and characterization of Proteus mirabilis bacteriophage T2 and its application.
Microb Pathog
September 2025
Key Laboratory of Animal Biochemistry and Nutrition, Ministry of Agriculture, College of Veterinary Medicine, Henan Agricultural University, Zhengzhou 450046, Henan province, China; Key Laboratory of Veterinary Biotechnology of Henan Province, College of Veterinary Medicine, Henan Agricultural Unive
Public health problems caused by foodborne illnesses have become increasingly serious. Although it was usually regarded as an opportunistic pathogen causing urinary tract infections in humans, recent years have seen an increasing number of foodborne infections related to P. mirabilis.
View Article and Find Full Text PDFProcess Rounds to Elevate Psychological Skills in Palliative Care.
J Palliat Med
September 2025
Department of Medicine, Section of Palliative Care, Stanford University School of Medicine, Stanford, California, USA.
A half-day workshop improved palliative care clinicians' ability to integrate psychological concepts into serious illness communication but created demand for longitudinal learning. To pilot "Process Rounds," a four-session, case-based, adapted psychotherapeutic supervision group reinforcing formulation, countertransference, and mindful intervention. Workshop graduates from four cohorts were invited; 25/143 enrolled.
View Article and Find Full Text PDFIs Training Alone Enough? A Comparison of Serious Illness Communication Training With and Without Implementation Strategies.
J Palliat Med
September 2025
Section of Palliative Care, Department of Medicine, Stanford School of Medicine, Stanford, California, USA.
Communication skills training alone has shown limited impact on improving the frequency and quality of serious illness conversations (SICs). Implementing structured support strategies may enhance both adoption and sustained use in clinical practice. Retrospective review of the impact of Serious Illness Care Program (SICP) training and implementation in outpatient and inpatient settings at a single academic center.
View Article and Find Full Text PDFPerceptions of Healthcare Professionals and Caregivers on the Use of Opioids: Cultural Aspects in a Rural Context in Uruguay.
Omega (Westport)
September 2025
Departamento de Bienestar y Salud, Universidad Católica del Uruguay, Uruguay.
A qualitative study using in-depth interviews was conducted to identify the level of knowledge, beliefs, and perceptions of family members and healthcare workers regarding the use of morphine as a pain treatment for individuals at the end of life. The study included healthcare professionals and caregivers of individuals who had died from serious illnesses affiliated with a rural health center in an inland city in the western region of Uruguay between August 2021 and June 2022. The findings may contribute to understanding the determinants that influence opioid use in healthcare centers lacking access to specialized palliative care.
View Article and Find Full Text PDF