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Objectives: The study aimed to increase the understanding of the lived experience of patients during the acute phase of a coronavirus disease 2019 (COVID-19) infection.
Method: A Web-based survey was distributed through established patient and public engagement and involvement groups and networks, social media, and by means of word of mouth. The survey covered questions relating to patient demographics, COVID-19 diagnosis, symptom profile, and patient experience during acute COVID-19.
Results: The findings demonstrate the varying symptom profiles experienced by people in the acute stage of COVID-19 infection, with participants sharing how they managed care at home, and/or accessed medical advice. Findings also highlight themes that people were concerned with being unable to receive care and believed they needed to rely heavily on family, with extreme thoughts of death.
Conclusions: Although the urgent threat to public health has been negated by efficacious vaccines and enhanced treatment strategies, there are key lessons from the lived experience of COVID-19 that should be used to prepare for future pandemics and public health emergencies.
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http://dx.doi.org/10.1017/dmp.2023.197 | DOI Listing |
J Adv Nurs
September 2025
Faculty of Psychology and Educational Sciences, KU Leuven, Leuven, Belgium.
Aim: To explore the identity and body experiences of emerging adults with congenital heart disease.
Design: Qualitative descriptive study.
Methods: Narratives from 152 emerging adults about living with congenital heart disease and its impact on their identity and body experiences were analysed using template analysis.
Health Commun
September 2025
Communication Studies Department, Coe College.
Many women in intimate relationships with violent partners often report facing stigma related to intimate partner violence (IPV), which typically includes blame, shame, discrimination, loss of status, dismissal, or isolation. Researchers studying IPV and stigma have yet to examine the content of stigmatizing messages from informal support networks, which may resonate with women for an extended period - - and contribute to the persistence of their adverse outcomes. To address this gap, this qualitative study explored the content of memorable stigmatizing messages in the accounts of twenty-eight women affected by IPV living in the United States.
View Article and Find Full Text PDFNeurodegener Dis Manag
September 2025
Division of Palliative Medicine, Department of Medicine, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia.
Background: Quality of life is an important goal of care for people living with amyotrophic lateral sclerosis (ALS) and their carers. The ALS Specific Quality of Life instrument Short Form (ALSSQOL-SF) has been translated and validated in various cultural contexts, however its utility in the Malaysian cultural context has not yet been evaluated.
Methods: The quality of life of 21 patients with ALS was evaluated using the ALSSOL-SF in either the English version or translated to the Malay language.
Death Stud
September 2025
Department of Psychology, University of Liverpool, Liverpool, UK.
Although there is considerable research into the impact of homicide on surviving family members, research is limited on subjective experiences of those who lost a parent due to homicide during childhood. Through interpretative phenomenological analysis, we conducted and analyzed in-depth semi-structured interviews, to explore lived experiences and perspectives of post-traumatic growth with adults who lost a parent due to homicide as a child. We developed five group experiential themes: 1.
View Article and Find Full Text PDFCardiol Young
September 2025
Monroe Carell Jr Children's Hospital Vanderbilt, Nashville, TN, USA.
Background And Objectives: With more than 1 million children in the United States living with a heart defect or condition, it is important to identify interventions that may minimise the long-term impacts of repeated medical surveillance and care. Thus, the purpose of this quasi-experimental study was to examine relationships between facility dog intervention and young children's anxiety during outpatient echocardiogram.
Methods: Participants were seventy children aged 18 months to 8 years undergoing echocardiogram in a paediatric cardiology clinic.