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Aim: To determine whether short-phase Occupational Performance Coaching combined with service navigation support is feasible for families waiting for autism assessment.
Method: A pilot feasibility study was conducted using a blinded randomization procedure that allocated participants to one of three trial arms: (1) face-to-face coaching, (2) videoconference coaching, and (3) usual care. Outcomes included a retention aim of 70-80%, goal attainment and secondary standardised measures of adaptive behaviour, social skills, parenting stress, service access and family quality of life.
Results: Caregivers and children (n = 16, child mean age of 3 years 7 months) were recruited following referral for an autism assessment. Retention was 75%, with change scores in performance and satisfaction of selected goals higher in the intervention groups than the usual care group.
Interpretation: Findings support progression to a future randomized controlled trial assessing intervention efficacy.
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http://dx.doi.org/10.1007/s10803-022-05558-3 | DOI Listing |
HERD
July 2025
Occupational Therapy, Thomas Jefferson University, Philadelphia, PA, USA.
This study aimed to better understand how the design of the pediatric outpatient waiting room impacts the experiences of autistic children. Outpatient waiting rooms are frequented by autistic children for a variety of healthcare services. Often, these settings consist of unpredictable, uncontrollable, and intense stimuli that may be difficult for children to tolerate.
View Article and Find Full Text PDFInt J Nurs Stud Adv
December 2025
Department of Caring Sciences, University of Gävle, Kungsbäcksvägen 47, Gävle 801 76, Sweden.
Background And Purpose: The number of people diagnosed with autism is increasing globally, and autism is associated with poorer health outcomes. However, there is a lack of knowledge regarding how physical healthcare is experienced and perceived by adult autistic patients. The purpose of this scoping review is to provide an overview of the research on adult autistic patients' experiences and perceptions of physical health care.
View Article and Find Full Text PDFJ Community Genet
June 2025
Department of Pediatrics, Boston University Chobanian and Avedisian School of Medicine, Boston, MA, USA.
With increasing demand for access to genetic services and the American College of Medical Genetics and Genomics' (ACMG) recommendation that individuals with autism spectrum disorder (ASD) and developmental delay be offered genetic evaluation, alternative service models for genetic care are needed to increase efficiency. Web-based tools have enhanced access to clinical genetics content and services, particularly for patients with common referral indications such as ASD. The Boston Medical Center pediatric genetics clinic reports on the creation of an Expedited ASD Genetics Clinic (EAGC) which includes a waiting room questionnaire, educational video, physical examination, and blood work for genetic testing.
View Article and Find Full Text PDFPediatr Int
June 2025
Department of Pediatrics, Kyoto Prefectural University of Medicine, Kyoto, Japan.
Background: The increasing prevalence of neurodevelopmental disorders (NDD), including autism spectrum disorder (ASD) and attention-deficit/hyperactivity disorder (ADHD), in children has led to concerns about waiting times for medical evaluation. Thus, Fukuchiyama City Hospital jointly established an ambulatory clinic for children with developmental disorders with the city government in 2010. This study aims to investigate behavioral challenges among patients aged 15 years and older attending the developmental outpatient clinic, particularly those diagnosed with ASD, to highlight challenges related to medical and social treatments.
View Article and Find Full Text PDFMol Autism
June 2025
Autism Research Centre, Department of Psychiatry, University of Cambridge, Douglas House, 18B Trumpington Road, Cambridge, CB2 8 AH, UK.
Background: Autistic communities in Europe continue to face difficulties accessing services despite increasing rates of autism diagnosis in recent years.
Methods: To investigate autistic people's access to services in Europe and reasons for unsuccessful access, we conducted the ACCESS-EU survey comprising of 2322 formally diagnosed autistic people and family carers living within the European Union (EU) and the United Kingdom (UK). The survey also examined age group (adult vs.