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Parents of children with developmental disabilities face many daily challenges that can lead to emotional and affective problems, difficulties in caregiving, and partial mental representations about themselves and their children. The multi-faceted nature of these parents' needs requires a multi-component approach that should include the analysis of priority support goals and the planning of tailored therapeutic actions. Despite different types of validated interventions are available, the choice of the most appropriate strategy to pursue a family-centered approach to support parents of infants with developmental disabilities is not obvious. In this scenario, we propose a multi-dimensional model, the porridge-like framework of parenting. It considers three interrelated domains in parents' experience - affective (A), behavioral (B), and cognitive (C) aspects - that are intertwined with the specific degree of the child's impairment (D). This ABCD model may provide professionals with pragmatically valid guidance to plan and deliver family-centered healthcare interventions. By covering the multi-dimensional nature of parenting challenges, it provides clinicians with conceptual categories to recognize the specific needs and to choose the most suitable therapeutic action to address them. In addition, it aims to promote an ethical approach to family-centered rehabilitation for children with developmental disabilities, maximizing the potentials of a collaborative assessment approach.
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http://dx.doi.org/10.1016/j.ridd.2021.104048 | DOI Listing |
Perspect Behav Sci
September 2025
Department of Psychological Studies in Education, Temple University, 1301 Cecil B. Moore Avenue, Philadelphia, PA 19122 USA.
This commentary critically appraises attacks on applied behavior analysis (ABA) from outside and-increasingly-within the field. Commonly repeated attacks are that ABA is coercive and suppresses individual identity, aligns with the medical model, causes trauma, and, in more extreme cases, constitutes abuse. We illustrate how these claims are based on unfounded criticism and longstanding myths about ABA and stand in direct contrast to the empirical foundations of behavior analysis.
View Article and Find Full Text PDFFront Child Adolesc Psychiatry
August 2025
Faculty of Medicine, Veracruzana University, Minatitlan, Mexico.
Parents of children with autism spectrum disorder (ASD) and attention deficit hyperactivity disorder (ADHD) face unique challenges that may significantly increase stress levels, potentially impacting the emotional well-being of the entire family. In Mexico, limited research has examined the association between parental stress and coping strategies among families with children with developmental disabilities. This study aimed to compare stress levels and coping strategies among parents of children with ASD, ADHD, and neurotypical developing (NTD) children, as well as to analyze differences in coping styles across these groups.
View Article and Find Full Text PDFJ Ment Health Res Intellect Disabil
November 2024
Department of Educational Psychology, University of Minnesota.
Introduction: There is a gap between individuals with intellectual and developmental disabilities (IDD) who need treatment for self-injurious behavior (SIB) and those who receive it. One contributing factor may be a multiplicity of beliefs about the nature of SIB and its treatment.
Methods: Using reflexive thematic analysis, we interviewed and integrated two knowledge sources: the perspectives of family caregivers for individuals with SIB and IDD and the perspectives of clinicians and researchers who treat and study self-injury.
J Health Serv Res Policy
September 2025
Department of Health and Society, University of Toronto Scarborough, Toronto, ON, Canada.
ObjectivesTo (1) understand the challenges and benefits of providing pregnancy care to people with disabilities and (2) identify strategies to address challenges, from the perspectives of health care and social service providers and decision-makers.MethodsWe undertook a qualitative descriptive study in Ontario, Canada, of 31 health care and social service providers and decision-makers. Participants completed semi-structured interviews about their education, training, and clinical or administrative experience working with pregnant and/or parenting people with physical, sensory, and intellectual or developmental disabilities, including challenges and benefits in pregnancy care provision, programming, and policies, as well as their recommendations to improve care.
View Article and Find Full Text PDFSpec Care Dentist
September 2025
School of Dentistry, Federal University of Santa Catarina, Florianópolis, Brazil.
Aims: Systematically review the literature to answer the focused question: "What is the best way to facilitate pain communication for patients with intellectual disabilities (ID) in dental care?"
Methods: A systematic search strategy was conducted in five databases and gray literature. Studies evaluating pain communication in dental care for patients with ID were included. The risk of bias was assessed according to the Meta-Analysis of Statistics Assessment and Review Instrument.