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This paper is intended to complement our extended documentation and analysis of the activities of the Gulf Coast Health Alliance: Health Risks related to the Macondo Spill project Community Outreach and Dissemination Core entitled, "Building and maintaining a citizen science network with fishermen and fishing communities after the Deepwater Horizon oil disaster using a Community-Based Participatory Research (CBPR) approach." We discuss nuances of CBPR practice, including trust-building, clarification of stakeholder expectations, balancing timelines and agendas, cultural fluency, and the importance of regional history-political-economic context, regulatory practices, and cultural life-ways-in creating social dynamics that overarch and underpin the entire process. We examine the unique role of knowledge-making hybrid structures like the project's Fishermen's citizen science network and compare/contrast this structure with other models of participatory science or deliberation. Finally, we reiterate the importance of environmental health literacy efforts, summarize project outcomes, and offer thoughts on the future roles of collaborative efforts among communities and institutional science in environmental public health.
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http://dx.doi.org/10.1177/1048291118810871 | DOI Listing |
Ann N Y Acad Sci
September 2025
University of Pennsylvania, Philadelphia, Pennsylvania, USA.
We document a mutually reinforcing set of belief-system defenses-cognitive chicanery-that transform "morally wrong" scientific claims into "empirically wrong" claims. Five experiments (four preregistered, N = 7040) show that when participants read identical abstracts that varied only in the sociomoral desirability of the conclusions, morally offended participants were likelier to (1) dismiss the writing as incomprehensible (motivated confusion); (2) deny the empirical status of the research question (motivated postmodernism); (3) endorse claims inspired by Schopenhauer's stratagems (The Art of Being Right) and the Central Intelligence Agency's (CIA's) strategies for citizen-saboteurs; and (4) endorse a set of contradictory complaints, including that sample sizes are too small and that anecdotes are more informative than data, that the researchers are both unintelligent and crafty manipulators, and that the findings are both preposterous and old news. These patterns are consistent with motivated cognition, in which individuals seize on easy strategies for neutralizing disturbing knowledge claims, minimizing the need to update beliefs.
View Article and Find Full Text PDFPLoS One
September 2025
Department of Engineering and School of Biomedical Engineering and Imaging Sciences, King's College London, London, United Kingdom.
Citizen science engages volunteers to contribute data to scientific projects, often through visual annotation tasks. Hearing based activities are rare and less well understood. Having high quality annotations of performed music structures is essential for reliable algorithmic analysis of recorded music with applications ranging from music information retrieval to music therapy.
View Article and Find Full Text PDFHealth Expect
October 2025
National Institute of Geriatrics, Mexico City, Mexico.
Introduction: Social participation is essential for healthy ageing. Older people must engage in social, political and cultural activities. Institutions must create spaces that enable their involvement.
View Article and Find Full Text PDFJMIR Hum Factors
September 2025
Media Psychology Lab, Department of Communication Science, KU Leuven, Leuven, Belgium.
Background: Out-of-hospital cardiac arrests (OHCAs) are a leading cause of death worldwide, yet first responder apps can significantly improve outcomes by mobilizing citizens to perform cardiopulmonary resuscitation before professional help arrives. Despite their importance, limited research has examined the psychological and behavioral factors that influence individuals' willingness to adopt these apps.
Objective: Given that first responder app use involves elements of both technology adoption and preventive health behavior, it is essential to examine this behavior from multiple theoretical perspectives.
Open Access J Contracept
September 2025
Coordinator for Centre for SET-SRHR Lira University, Lira, Uganda.
Background: Conventional top-down health interventions often exclude adolescents and community stakeholders from service design and implementation, resulting in low uptake and a mismatch with young people's needs. The CAFFP-PAC initiative in Northern Uganda sought to explore how a community-led, adolescent-centered inception process could support integration of adolescent-friendly family planning and post-abortion care into primary healthcare services.
Methods: A participatory qualitative design was employed during an inception meeting in Lira City on April 1, 2025, guided by principles of community-based participatory research and citizen science.