Objective: We (1) compared anxiety symptom levels in a multinational systemic sclerosis (SSc) cohort to a general population normative sample and (2) evaluated sociodemographic, lifestyle, and SSc disease factors associated with symptoms.
Methods: Scleroderma Patient-centered Intervention Network Cohort participants completed the Patient-Reported Outcomes Measurement Information System (PROMIS) Version 2 4a Anxiety domain upon enrolment. PROMIS domain scores use T-scores (mean = 50, standard deviation = 10) calibrated to a United States normative sample.
Lancet Rheumatol
October 2024
J Scleroderma Relat Disord
October 2023
Background: How support and informational needs of people with systemic sclerosis (SSc) may differ by time since diagnosis is not known. Our objective was to determine if informational and support needs of recently diagnosed individuals with systemic sclerosis differ from people diagnosed for longer periods of time.
Methods: The North American Scleroderma Support Group Members survey included 30 items on reasons for attending support groups.
Background: Transferring from paediatric to adult care can be challenging. Adolescents and young adults (AYAs) with chronic health conditions need to develop a specific set of skills to ensure lifelong medical follow-up due to the chronicity of their condition. The Transition Readiness Assessment Questionnaire-French version (TRAQ-FR) is a 19-item questionnaire measuring such skills.
View Article and Find Full Text PDFWhile face masks provide necessary protection against disease spread, they occlude the lower face parts (chin, mouth, nose) and consequently impair the ability to accurately perceive facial emotions. Here we examined how wearing face masks impacted making inferences about emotional states of others (i.e.
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