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Aim: To explore the lived experiences of nurses and patients co-producing evidence-based care for long-term conditions, and to understand how they make sense of this process within relational, emotional and organisational contexts.
Design: A qualitative study using the Interpretative Phenomenological Approach.
Methods: Semistructured interviews were conducted with 20 participants, comprising 11 registered nurses and 9 adult patients living with at least one Long-Term Condition. Participants were recruited from primary and secondary care settings across the Midlands, England. Data were collected between February and August 2023 and analysed using Interpretative Phenomenological Approach's iterative and inductive framework.
Results: Five experiential themes were identified: (1) weaving together different knowledges, (2) the relational foundations of co-production, (3) organisational pressures and misalignments, (4) shifting identities and power dynamics and (5) emotional and ethical complexity in co-producing care. Participants described co-production as a deeply relational and negotiated process, shaped by trust, vulnerability and shared decision-making.
Conclusion: Co-producing evidence-based care in Long-Term Condition management involves more than implementing guidelines. It is a relational, emotional and contextual practice that requires shared interpretation of evidence, deep listening and responsiveness to individual lives. Findings suggest a need to reframe evidence-based practice as a co-creative process grounded in relational ethics and contextual awareness.
Impact And Implications: Findings emphasise the centrality of relational competence and organisational flexibility in enabling co-produced care. Findings call for educational and policy reforms that value emotional labour, professional humility and patient knowledge as essential to evidence-based nursing. Internationally, this work provides a grounded model for integrating person-centred approaches into chronic care delivery and policy.
Contribution To The Wider Global Clinical Community: The study offers a relational model of evidence-based practice that moves beyond protocol-driven care to one shaped through dialogue, empathy and contextual negotiation, offering practical insights for transforming professional roles and health systems globally.
Patient And Public Involvement: Patient representatives contributed to study design, development of interview guides and interpretation of findings to ensure alignment with lived experiences.
Reporting Method: This study follows the SRQR guideline.
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http://dx.doi.org/10.1111/jan.70127 | DOI Listing |
Healthcare (Basel)
August 2025
School of Population Health, University of New South Wales, Sydney, NSW 2052, Australia.
Integrated multidisciplinary care is recognised as essential for people living with motor neurone disease (PlwMND) and their families. The values underpinning integrated care, such as person-centredness, respect, empowerment, and co-production, are central to delivering meaningful and comprehensive support. Trust is an essential yet often overlooked element of effective person- and family-centred integrated care, particularly for PlwMND.
View Article and Find Full Text PDFJ Adv Nurs
August 2025
School of Nursing and Allied Health, Newman University, Birmingham, UK.
Aim: To explore the lived experiences of nurses and patients co-producing evidence-based care for long-term conditions, and to understand how they make sense of this process within relational, emotional and organisational contexts.
Design: A qualitative study using the Interpretative Phenomenological Approach.
Methods: Semistructured interviews were conducted with 20 participants, comprising 11 registered nurses and 9 adult patients living with at least one Long-Term Condition.
Health Expect
August 2025
EPPI Centre, Social Research Institute, University College London, London, UK.
Introduction: There is increasing work towards drawing on theory, implementing co-production and accounting for complexity within the production of systematic reviews for public health. In this paper, we report on the process of co-producing a theory; in this case, a graphical articulation of theory in the form of a logic model, which describes how contextual factors influence children's health.
Methods: We undertook a series of three online co-production workshops, involving 18-20 participants in each, and worked with an advisory group of experts with professional and lived expertise.
Skin Health Dis
April 2025
Centre of Evidence Based Dermatology, School of Medicine, University of Nottingham, Nottingham, UK.
Background: Eczema is a prevalent, chronic, itchy skin condition that often persists into adulthood and significantly affects the quality of life of patients and their families. With no cure available at present, effective management is crucial. Although important patient priorities related to eczema self-management have been identified, they are rarely the focus of large, high-quality randomized controlled trials (RCTs).
View Article and Find Full Text PDFClin Teach
June 2025
Stoneygate Centre for Empathic Healthcare, Leicester Medical School, University of Leicester, George Davies Centre, Leicester, UK.
Background: Medical curriculum development rarely involves patients, educators, and students, meaning that key stakeholders' voices are not adequately represented in curricular content. In this paper, we describe the co-production of an empathy-focused medical curriculum involving patients, educators, and students.
Approach: We adopted the National Institute for Health Research co-production principles to develop three curriculum streams: 1) delivering evidence-based empathy lectures, 2) involving patients in biomedical science teaching, and 3) implementing longitudinal empathic communication and clinical skills teaching.