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Purpose: The implementation of person-centred care varies across different contexts. This may be due to various barriers such as context, different patient populations, care providers and how patients understand what constitutes care. Paediatric healthcare practitioners recognise this gap and require a person-centred care training programme tailored to the needs of children in healthcare. The study aimed to apply a co-design methodology to adapt and test a paediatric person-centred care training programme for healthcare practitioners working at a private hospital in South Africa.
Design And Methods: A qualitative participatory action research methodology using a co-design approach was followed. The co-design approach included six principles or steps administered during six focus groups with 30 paediatric stakeholders (e.g., nursing managers, nurses, a paediatric gastroenterologist, a child life specialist, a counsellor, a dietician, and researchers).
Results: The results of this study included the adaptation of a paediatric person-centred care training programme for healthcare practitioners working at a private hospital in South Africa. The outcomes of the co-design process included adaptations to the structure and format of the programme to ensure contextual and cultural relevance. During a needs analysis, the content of the identified programme was appropriate.
Conclusion: The outcome of this study was the co-design of a paediatric person-centred care training programme that is human-centred, tangible, and collaborative. This study emphasised the importance of contextual factors when considering implementing a programme designed and developed in another context.
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http://dx.doi.org/10.1016/j.pedn.2025.07.011 | DOI Listing |
BMJ Ment Health
September 2025
Independent Researcher, Cardiff, Cardiff, UK
Background: Mental health research has long been structured around qualitative and quantitative methodologies, often marginalising experiential knowledge and reinforcing hierarchies of expertise. Although coproduction has gained traction as a participatory approach, its methodological status remains contested, leading to inconsistent practices and risks of tokenism.
Objective: This paper explores whether coproduction should be recognised not merely as a participatory ideal but as a third methodological pillar in mental health research, with distinct philosophical, ethical and practical foundations.
Dan Med J
August 2025
Psychiatry, Aalborg University Hospital, Aalborg.
People with severe mental illness die 10-20 years earlier than the general population, mostly from preventable physical diseases. Fragmented care, under-screening and undertreatment of cardiovascular, respiratory, infectious and cancer conditions widen this gap. Embedding physical screening, proactive treatment, smoking cessation, cancer checks and multidisciplinary, person-centred care into psychiatric services could close this mortality divide.
View Article and Find Full Text PDFScand J Caring Sci
September 2025
Namsos Hospital, Nord-Trøndelag Hospital Trust, Namsos, Norway.
Introduction: Frontotemporal dementia (FTD) is a neurodegenerative disease that often causes young-onset dementia and affects patients' behaviour and personality. Although FTD significantly burdens patients' family caregivers, their experiences with follow-up health care services remain poorly understood.
Aim: In our study, we explored how family caregivers of patients with FTD have experienced follow-up health care for FTD, particularly their involvement in, influence over and support received during the pre- and post-diagnostic stages.
Nurs Older People
September 2025
Lukka Care Homes, London, England.
Moving into a care home is a major life event, and for people with dementia and their families it can be particularly stressful and challenging. This article outlines how nurses working in care homes can support family carers of residents with dementia during the transition into the care home and throughout the person's stay. • Family carers may experience feelings of loss, guilt and loneliness when they relinquish care.
View Article and Find Full Text PDFJ Prim Care Community Health
September 2025
Division of Epidemiology and Biostatistics, School of Public Health, Faculty of Health Sciences, University of Cape Town, South Africa.
Objectives: The COVID-19 pandemic disrupted routine healthcare services, disproportionately affecting people living with chronic conditions such as type 2 diabetes (T2D). In response, the Western Cape Government Health implemented home delivery of medication (HDM) via community health workers (CHWs) to maintain continuity of care. This study aimed to evaluate the association between socioeconomic factors and access to HDM among T2D patients in Cape Town, South Africa, during the pandemic, with a focus on equity and health system responsiveness.
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