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National, international and organizational Open Science (OS) policies are being formulated to improve and accelerate research through increased transparency, collaboration and better access to scientific knowledge. Yet, there is mounting concern that OS policies do not effectively capture the ethos of OS, and particularly its goal of making science more collaborative, inclusive and socially engaged. This study explores how OS is conceptualized in emerging OS policies and to what extent notions of equity, diversity and inclusion (EDI), as well as public participation are reflected in policy guidelines and recommendations. We use a qualitative document research approach to critically analyse 52 OS policy documents published between January 2020 and December 2022 in Europe and the Americas. Our results show that OS policies overwhelmingly focus on making research outputs publicly accessible, neglecting to advance the two aspects of OS that hold the key to achieving an equitable and inclusive scientific culture-namely, EDI and public participation. While these concepts are often mentioned and even embraced in OS policy documents, concrete guidance on how they can be promoted in practice is overwhelmingly lacking. Rather than advancing the openness of scientific findings first and promoting EDI and public participation efforts second, we argue that incentives and guidelines must be provided and implemented concurrently to advance the OS movement's stated goal of making science open to all.
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http://dx.doi.org/10.1098/rsos.240857 | DOI Listing |
J Bioeth Inq
September 2025
Swedish National Centre for Priorities in Health, Department of Health, Medicine, and Caring Sciences, Linköping University, 581 83, Linköping, Sweden.
When treatments are deemed not to be cost-effective and face non-reimbursement, policymakers in publicly funded healthcare systems may decide to ration treatments by withholding it from future patients. However, they must also address a critical question: should they also ration treatments by withdrawing it from patients already having access to the treatment, or is there an ethical difference between withdrawing and withholding treatments? To explore this question, we conducted a behavioural experiment (n=1404), examining public support for withdrawing and withholding treatments in reimbursement decisions across eleven different circumstances. Overall, public support for rationing by withdrawing and withholding was low, with no general perceived difference between withdrawing and withholding treatments.
View Article and Find Full Text PDFDiabetologia
September 2025
Department of Diabetology and Internal Medicine, Medical University of Warsaw, Warsaw, Poland.
This review article, developed by the EASD Global Council, addresses the growing global challenges in diabetes research and care, highlighting the rising prevalence of diabetes, the increasing complexity of its management and the need for a coordinated international response. With regard to research, disparities in funding and infrastructure between high-income countries and low- and middle-income countries (LMICs) are discussed. The under-representation of LMIC populations in clinical trials, challenges in conducting large-scale research projects, and the ethical and legal complexities of artificial intelligence integration are also considered as specific issues.
View Article and Find Full Text PDFJ Youth Adolesc
September 2025
University of California, Davis, CA, USA.
School interethnic climate has interpersonal and intrapersonal implications for adolescent development, but little is known of how it influences their psychological adjustment over time, let alone what drives this influence. This study examined whether two components of identity-school belonging perceptions and ethnic-racial identity beliefs-mediate the association between 10th grade perceptions of school interethnic climate and 12th grade psychological adjustment. The analytic sample includes 849 students (50% girls; 30% Latinx, 27% White, 16% Asian/Pacific Islander, 18% Multiethnic, 6% African American/Black, 3% Other).
View Article and Find Full Text PDFTranspl Int
August 2025
Department of Public Health and Primary Care, Academic Center for Nursing and Midwifery, KU Leuven, Leuven, Belgium.
Interest Groups Advocacy
March 2025
Università della Svizzera italiana (USI), Via Giuseppe Buffi 13, 6900 Lugano, Switzerland.
In political studies, lobbying is portrayed as a vital process of political participation, contributing information, policy capacities, and political capital to policymaking, but also as a potential source of representation biases, undue influence, and policy capture. Given such Janus-faced nature of lobbying within democracy, the primary aim of this article is to investigate which perception prevails among citizens empirically. By analysing the primary data of two surveys of 4000 Canadian and 1600 Swiss citizens, it investigates the public perception of lobbying across countries with contrasting institutional and regulatory frameworks and different levels of trust in political institutions.
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