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Background: The global rise in chronic health conditions highlights the importance of self-management in empowering people to actively participate in their healthcare. People with intellectual disabilities are disproportionately affected by these conditions and face barriers in accessing self-management interventions.
Method: This scoping review mapped literature on self-management approaches for adults with intellectual disabilities. A three-step search strategy was employed, involving electronic databases, reference lists, and advocacy organisation websites. Data on study design, intervention characteristics and outcomes were synthesised.
Results: The review included 38 articles from 34 studies, focusing on adults with intellectual disabilities. Studies with varied designs and interventions reported successful engagement and positive health outcomes when self-management interventions were adapted for adults with intellectual disabilities and featured caregiver support.
Main Conclusions: Adapted self-management interventions are feasible and yield positive outcomes for adults with intellectual disabilities. Future research should focus on long-term outcomes, client-caregiver models and co-design methodology.
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http://dx.doi.org/10.1111/jar.70057 | DOI Listing |
JAMA Netw Open
September 2025
Department of Epidemiology, University of Texas Health Science Center at Houston School of Public Health, Houston.
Importance: Trisomy 13 (T13) and trisomy 18 (T18) are chromosomal abnormalities with high mortality rates in the first year of life. Understanding differences in long-term survival between children with full vs mosaic or partial trisomy is crucial for prognosis and health care planning.
Objective: To examine the differences in 10-year survival between children with full T13 and T18 vs those with mosaic or partial trisomy.
Indian J Psychiatry
August 2025
Biostatistics, UCMS, New Delhi, India.
Background: Intellectual Disability poses the significant public health challenge and stigma. Notably, there has been a steady increase over the past few years in the issuance of Unique Disability Identity (UDID) cards, which are specifically designated for individuals with disabilities.
Aim: To examine socio-demographic patterns and clinical profiles of individuals certified with intellectual disability (ID) for UDID.
Cureus
September 2025
Research, Rinaldi Fontani Foundation, Florence, ITA.
Stroke remains a leading cause of long-term disability worldwide, and early intervention is critical for optimizing neurorehabilitative outcomes by capitalizing on the heightened neuroplasticity of the acute and subacute phases. This study aimed to evaluate whether the integration of Radio Electric Asymmetric Conveyer (REAC) neurobiological modulation protocols, Neuro Postural Optimization (NPO) and Neuro Muscular Optimization (NMO), into early post-stroke rehabilitation can accelerate and enhance functional recovery compared to conventional rehabilitation alone. Thirteen patients (nine males, four females; age range: 56-86 years; mean: 74) received a single NPO session, followed by an intensive cycle of 10 NMO sessions distributed over five to six consecutive days.
View Article and Find Full Text PDFFront Med (Lausanne)
August 2025
Research Centre for Medical Genetics, Moscow, Russia.
Acroscyphodysplasia (ASD) is an ultra-rare skeletal dysplasia characterized by severe brachydactyly, metaphyseal scaphoid knee deformities, growth retardation, and intellectual disability. To date, only seven cases of ASD have been reported, all associated with missense variants in the gene. We report a 7-year-old girl with ASD features, including midface hypoplasia, severe growth retardation (-4.
View Article and Find Full Text PDFJ Ment Health Res Intellect Disabil
November 2024
Department of Educational Psychology, University of Minnesota.
Introduction: There is a gap between individuals with intellectual and developmental disabilities (IDD) who need treatment for self-injurious behavior (SIB) and those who receive it. One contributing factor may be a multiplicity of beliefs about the nature of SIB and its treatment.
Methods: Using reflexive thematic analysis, we interviewed and integrated two knowledge sources: the perspectives of family caregivers for individuals with SIB and IDD and the perspectives of clinicians and researchers who treat and study self-injury.