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Background: Considering the high burden of disease in young children measurement of Health-Related Quality of Life is needed to evaluate the burden of morbidity. This study aims to report on the validity and reliability of the isiXhosa EuroQol Toddler and Infant Populations (EQ-TIPS) measure for South Africa.
Methods: A sample of 181 caregivers of children 0-36 months were recruited from a hospital in-patient (inpt) and outpatient (outpt) facility and crèches. The EQ-TIPS, Ages and Stages Questionnaire (ASQ), Faces, Leg, Activity, Cry, Consolability (FLACC) and dietary information were administered at baseline. EQ-TIPS was administered one week later in crèche children for test-retest reliability.
Results: Known groups showed significant differences for pain (X=37.21, p<0.001), and EQ-TIPS level sum score (KWH=25.9, p<0.001) between health groups. The Visual Analogue Scale was unable to discriminate general health between groups (KW-H=3.92, p=0.141). Concurrent validity was weak to moderate and significant for all dimensions hypothesised to correlate. There was significant fair to moderate test-retest reliability for EQ-TIPS dimensions of movement, play, pain and eating.
Conclusion: The isiXhosa EQ-TIPS is valid and reliable for very young children in South Africa and we suggest that it be included in the assessment of children with health conditions within this context.
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http://dx.doi.org/10.4314/ahs.v23i4.63 | DOI Listing |
Eur J Health Econ
July 2025
Child Health Economics Unit, Centre for Health Policy, Melbourne School of Population and Global Health, The University of Melbourne, VIC, Australia.
Eur J Health Econ
July 2025
University of Cape Town, Cape Town, South Africa.
Many health care interventions are aimed at very young children, including public health measures such as vaccines, and new, high-cost medicines for rare diseases. This has led to increasing interest in evidence on the effectiveness and cost effectiveness of treatments in this age group. EQ-TIPS has been developed as a concise, generic health outcomes measure in 0-3-year-olds.
View Article and Find Full Text PDFBMJ Open
July 2025
Paediatrics and Child Health, University of Cape Town, Rondebosch, South Africa.
Introduction: The experimental EuroQol Toddler and Infant Populations (EQ-TIPS) instrument is currently under development as a health-related quality of life (HRQoL) measure for toddlers and infants aged 0-36 months. Using this protocol, researchers can conduct surveys with discrete choice experiments (DCEs) that examine the key properties of HRQoL instruments, specifically whether severity aligns with preferences across each attribute and the extent to which attributes influence choices. To demonstrate this protocol, we will conduct two waves of DCE surveys using different choice tasks and a common scenario (a 1-month health episode for a 1-year-old child).
View Article and Find Full Text PDFBMJ Open
December 2024
Clinical Sciences, Murdoch Children's Research Institute, Melbourne, Victoria, Australia.
Introduction: Infants born very preterm (VPT, <32 weeks' gestation) are at increased risk for neurodevelopmental impairments including motor, cognitive and behavioural delay. Parents of infants born VPT also have poorer mental health outcomes compared with parents of infants born at term.We have developed an intervention programme called TEDI-Prem (Telehealth for Early Developmental Intervention in babies born very preterm) based on previous research.
View Article and Find Full Text PDFChildren (Basel)
August 2024
Department of Paediatrics and Child Health, University of Cape Town, Cape Town 7925, South Africa.
Objectives: The EQ-TIPS was developed to measure the Health-Related Quality of Life in infants/toddlers. Considering the rapid development in this period, this study aimed to investigate age-related variations in EQ-TIPS performance.
Methods: Data from 551 infants/toddlers living with a health condition were analysed.