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Challenges to recruitment of family caregivers exist and are amplified when consent must occur in the context of chaotic healthcare circumstances, such as the transition from hospital to home. The onset of the COVID-19 pandemic during our randomized controlled trial provided an opportunity for a natural experiment exploring and examining different consent processes for caregiver recruitment. The purpose of this publication is to describe different recruitment processes (in-person versus virtual) and compare diversity in recruitment rates in the context of a care recipient's hospitalization. We found rates of family caregiver recruitment for in-person versus virtual were 28% and 23%, respectively (p = 0.01). Differences existed across groups with family caregivers recruited virtually being more likely to be younger, white, have greater than high school education, and not be a spouse or significant other to the care recipient, such as a child. Future work is still needed to identify the modality and timing of family caregiver recruitment to maximize rates and enhance the representativeness of the population for equitable impact.
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http://dx.doi.org/10.1186/s13063-024-08288-2 | DOI Listing |
JMIR Res Protoc
September 2025
Department of Health Services Research & Administration, College of Public Health, University of Nebraska Medical Center, Omaha, NE, United States.
Background: With the availability of more advanced and effective treatments, life expectancy has improved among patients with metastatic breast cancer (MBC), but this makes communication with their medical oncologist more complex. Some patients struggle to learn about their therapeutic options and to understand and articulate their preferences. Mobile health (mHealth) apps can enhance patient-provider communication, playing a crucial role in the diagnosis, treatment, quality of life, and outcomes for patients living with MBC.
View Article and Find Full Text PDFPalliat Med Rep
April 2025
Department of Nursing Studies, Zhejiang University School of Medicine, Medical School of Zhejiang University, Hangzhou, China.
Background: Advanced breast cancer patients often require palliative care (PC) to manage significant symptoms, relying heavily on nurses' competence.
Objective: Evaluate whether a structured PC training program can enhance nurses' competence in breast cancer care.
Methods: After an online announcement at Zhejiang Hospital, nurses enrolled in the PC training program.
Palliat Med Rep
May 2025
Department of Respiratory Medicine, Kitasato University School of Medicine, Sagamihara, Japan.
Background: Although early palliative care (EPC) integrated into standard cancer care improves the quality of lives of patients with cancer and their caregivers, implementation strategies for EPC programs in individual clinical settings have not been established.
Objective: This pilot randomized controlled trial explored the feasibility, acceptability, and effectiveness of nurse-led EPC using a screening-based program that focused on the individual concerns of patients with advanced lung cancer and their caregivers.
Design: This pilot study was a parallel-group randomized controlled trial in which patients were randomly assigned (1:1) to receive either EPC using the care program or standard care alone.
J Public Child Welf
June 2025
City University of New York, Hunter College, United States.
This pilot study sought to examine the acceptability of implementing a modified behavioral parent training program, the 4Rs and 2Ss intervention, within a Child Welfare (CW) placement prevention service. CW staff (=12; caseplanners (=6), supervisors (=4), and administrators (=2)) and CW-involved families (=12) completed surveys which were followed by semi-structured interviews and a focus group to explore the acceptability of implementing the modified 4Rs and 2Ss in the CW setting. All quantitative benchmarks for high acceptability were met (i.
View Article and Find Full Text PDFCHEST Pulm
June 2025
Department of Pulmonary, Critical Care and Sleep Medicine, University of Kansas Medical Center, Kansas City KS.
Background: Rheumatoid arthritis-associated interstitial lung disease (RA-ILD) portends a devastating prognosis for patients, with survival typically being < 5 to 8 years after diagnosis. Limited clinical trial data exist to guide treatment strategies, and the efficacy of current strategies-immunomodulation and antifibrotics-remains uncertain. Large randomized controlled trials are costly, but pragmatic trial designs could reduce expenses.
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