Evaluation of the Fetal Alcohol Spectrum Disorder Hub Australia website.

Drug Alcohol Rev

Faculty of Medicine and Health, Specialty of Child and Adolescent Health, The University of Sydney, Sydney, Australia.

Published: September 2024


Category Ranking

98%

Total Visits

921

Avg Visit Duration

2 minutes

Citations

20

Article Abstract

Introduction: To evaluate use and utility of the Fetal Alcohol Spectrum Disorder (FASD) Hub Australia website.

Methods: Online REDCap user survey incorporating the Website Evaluation Questionnaire, open ended questions, Google metrics data and an accessibility audit.

Results: Seventy-six participants: researchers (32%), health professionals (29%) and policymakers/advocates (16%) completed the survey. Most were from Australia (95%) and were likely or very likely to recommend the FASD Hub to colleagues (92%), friends (74%) and patients (72%). The mean Website Evaluation Questionnaire score was at least 3.45/5 for all dimensions (ease of use, hyperlinks, structure, relevance, comprehension, completeness, layout, search option); range 3.45 (search option) to 4.04 (relevance). Participants found the content trustworthy (92%) but wanted more information for, and to support, Aboriginal and Torres Strait Islander peoples, and improved search capacity. Google metrics identified 25,534 unique users over 6 months (82% new users); 83% aged 18-44 years, 72% female and 35% international.

Conclusions: Users found the FASD Hub accessible, authoritative and useful and suggested improvements.

Download full-text PDF

Source
http://dx.doi.org/10.1111/dar.13878DOI Listing

Publication Analysis

Top Keywords

fasd hub
12
fetal alcohol
8
alcohol spectrum
8
spectrum disorder
8
hub australia
8
website evaluation
8
evaluation questionnaire
8
google metrics
8
search option
8
evaluation fetal
4

Similar Publications

Structural brain network organization in children with prenatal alcohol exposure.

Neuroimage Clin

November 2024

Murdoch Children's Research Institute, Melbourne, Australia; Turner Institute for Brain and Mental Health, Monash University, Clayton, Victoria, Australia; Department of Paediatrics, The University of Melbourne, Victoria, Australia. Electronic address:

Introduction: There is growing evidence suggesting that children with prenatal alcohol exposure (PAE) struggle with cognitively demanding tasks, such as learning, attention, and language. Complex structural network analyses can provide insight into the neurobiological underpinnings of these functions, as they may be sensitive for characterizing the effects of PAE on the brain. However, investigations on how PAE affects brain networks are limited.

View Article and Find Full Text PDF

Evaluation of the Fetal Alcohol Spectrum Disorder Hub Australia website.

Drug Alcohol Rev

September 2024

Faculty of Medicine and Health, Specialty of Child and Adolescent Health, The University of Sydney, Sydney, Australia.

Article Synopsis
  • The study assessed the Fetal Alcohol Spectrum Disorder (FASD) Hub Australia website's effectiveness and user satisfaction through an online survey with diverse participant groups.
  • A total of 76 participants, mostly from Australia, reported high likelihoods of recommending the site and rated its usability dimensions as generally positive, with scores ranging from 3.45 to 4.04 on a 5-point scale.
  • Users appreciated the site's authoritative content but requested more resources for Aboriginal and Torres Strait Islander communities and enhancements in search functions.
View Article and Find Full Text PDF

Introduction: Fetal alcohol spectrum disorder (FASD) is a neurodevelopmental disorder caused by alcohol exposure during pregnancy. FASD is associated with neurodevelopmental deviations, and 50%-94% of children with FASD meet the Diagnostic and Statistical Manual of Mental Disorders-fifth edition diagnostic criteria for attention deficit hyperactivity disorder (ADHD). There is a paucity of evidence around medication efficacy for ADHD symptoms in children with FASD.

View Article and Find Full Text PDF

Background: Children with fetal alcohol spectrum disorder (FASD) often experience delayed, missed, or incorrect diagnosis due to low FASD awareness and diagnostic capacity. Current strategies to expand awareness and diagnostic capacity are insufficient or impractical.

Methods: This project examined the feasibility of Extension for Community Healthcare Outcomes (ECHO) tele-mentoring to train community clinicians about FASD.

View Article and Find Full Text PDF

Sex differences in the transcriptome of extracellular vesicles secreted by fetal neural stem cells and effects of chronic alcohol exposure.

Biol Sex Differ

April 2023

School of Medicine, Department of Neuroscience and Experimental Therapeutics, Medical Research and Education, Texas A&M University Health Science Center, Building 8447 Riverside Parkway, Bryan, TX, 77807-3260, USA.

Background: Prenatal alcohol (ethanol) exposure (PAE) results in brain growth restriction, in part, by reprogramming self-renewal and maturation of fetal neural stem cells (NSCs) during neurogenesis. We recently showed that ethanol resulted in enrichment of both proteins and pro-maturation microRNAs in sub-200-nm-sized extracellular vesicles (EVs) secreted by fetal NSCs. Moreover, EVs secreted by ethanol-exposed NSCs exhibited diminished efficacy in controlling NSC metabolism and maturation.

View Article and Find Full Text PDF