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Background: Literacy is one of the most important skills a students can achieve, as it provides access to information and communication. Unfortunately, literacy skills are not easily acquired, especially for students with intellectual disabilities who require augmentative and alternative communication (AAC). There are many barriers to literacy acquisition, some due to low expectations from parents and teachers and lack of evidence-based reading programs and reading materials adapted for AAC. Barriers as a result of extensive support needs is also a real factor. This trial aims to deliver reading instructions to 40 students with intellectual disabilities who require AAC and contribute in the debate on how to best support this population through reading instructions to maximizes their reading skills.
Methodology: Forty non-verbal or minimally verbal students (age 6-14) with intellectual disabilities who require AAC will be part of a reading intervention with a multiple single-case design with four randomized baselines. The intervention period will last for 18 months and will commence in March 2023. The students will receive the intervention in a one-to-one format, working systematically with a reading material that contains phonological awareness and decoding tasks based on the Accessible Literacy Learning (ALL) developed by Janice Light and David McNaughton. All the teachers will be trained to deliver the reading intervention.
Discussion: The reading material "Lesing for alle" (Reading for all) is based on and follow the strategies behind the research of ALL. The current trial will through a reading intervention contribute to move beyond only teaching sight words and combine several reading components such as sound blending, letter-sound correspondence, phoneme segmentation, shared reading, recognition of sight words, and decoding. The strategies and methods in use is built on the existing science of reading, especially what has been effective in teaching reading for students with intellectual disabilities who require AAC. There is limited generalizability of prior findings in reading-related phonological processing interventions to different populations of them who use AAC specially outside of the USA. More research is needed to understand how programs designed to improve reading skills across other settings understand the program's long-term effects and to study the effectiveness when delivered by educators who are not speech language therapists or researchers.
Trial Registration: NCT05709405 . Registered 23 January 2023.
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http://dx.doi.org/10.1186/s13063-023-07452-4 | DOI Listing |
Am J Speech Lang Pathol
September 2025
American Speech-Language-Hearing Association, Rockville, MD.
Purpose: Since its inception, the National Joint Committee for the Communication Needs of Persons with Severe Disabilities (NJC) has focused specifically on advocating for individuals with significant communication support needs resulting from intellectual disability. The purpose of this review article is to describe the history of terminology used to describe this group of individuals, share the results of a recent survey completed by 102 members of our NJC Network, and discuss the implications of decisions regarding terminology in the NJC's ongoing advocacy efforts.
Method: History of terminology used to describe people with intellectual disability is documented by reviewing the literature, policies, professional organizations, and self-advocacy groups that used various terms from the early 20th century to present day.
JAMA Netw Open
September 2025
Department of Epidemiology, University of Texas Health Science Center at Houston School of Public Health, Houston.
Importance: Trisomy 13 (T13) and trisomy 18 (T18) are chromosomal abnormalities with high mortality rates in the first year of life. Understanding differences in long-term survival between children with full vs mosaic or partial trisomy is crucial for prognosis and health care planning.
Objective: To examine the differences in 10-year survival between children with full T13 and T18 vs those with mosaic or partial trisomy.
Indian J Psychiatry
August 2025
Biostatistics, UCMS, New Delhi, India.
Background: Intellectual Disability poses the significant public health challenge and stigma. Notably, there has been a steady increase over the past few years in the issuance of Unique Disability Identity (UDID) cards, which are specifically designated for individuals with disabilities.
Aim: To examine socio-demographic patterns and clinical profiles of individuals certified with intellectual disability (ID) for UDID.
Cureus
September 2025
Research, Rinaldi Fontani Foundation, Florence, ITA.
Stroke remains a leading cause of long-term disability worldwide, and early intervention is critical for optimizing neurorehabilitative outcomes by capitalizing on the heightened neuroplasticity of the acute and subacute phases. This study aimed to evaluate whether the integration of Radio Electric Asymmetric Conveyer (REAC) neurobiological modulation protocols, Neuro Postural Optimization (NPO) and Neuro Muscular Optimization (NMO), into early post-stroke rehabilitation can accelerate and enhance functional recovery compared to conventional rehabilitation alone. Thirteen patients (nine males, four females; age range: 56-86 years; mean: 74) received a single NPO session, followed by an intensive cycle of 10 NMO sessions distributed over five to six consecutive days.
View Article and Find Full Text PDFFront Med (Lausanne)
August 2025
Research Centre for Medical Genetics, Moscow, Russia.
Acroscyphodysplasia (ASD) is an ultra-rare skeletal dysplasia characterized by severe brachydactyly, metaphyseal scaphoid knee deformities, growth retardation, and intellectual disability. To date, only seven cases of ASD have been reported, all associated with missense variants in the gene. We report a 7-year-old girl with ASD features, including midface hypoplasia, severe growth retardation (-4.
View Article and Find Full Text PDF