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Article Abstract

Caring for a child or adolescent with palliative care needs can significantly influence the physical, mental, financial, and social well-being of caregivers. Due to this multifaceted impact, there is a demand for evidence-based support that meets the distinct needs of this population. This study aims to evaluate the effect the Photographs of Meaning Program (POM) has on meaning and purpose, well-being, and perceived social support of pediatric palliative caregivers (PPCGs). Over an eight-week period, participants followed a meaning-making curriculum via social media. Following the social media portion of the intervention, a reflection and closure event and a community photograph exhibit were held. Participants completed pre- and post-test measures. Eighteen PPCGs participated in POM. Settings included participant homes, the medical campus of the palliative care program, and a community art gallery. Participant meaning and purpose were assessed through the Meaning in Life Questionnaire. The Flourishing Scale measured PPCG well-being, while the Social Provisions Scale assessed perceived social support. Participants were also given a satisfaction survey at study closure. Presence ( = 0.003) and search ( = 0.023) for meaning were both positively impacted at post-test. Participants' ratings of well-being ( = 0.037), overall social support ( = 0.004), areas of attachment ( = 0.003), social integration ( = 0.026), reassurance of worth ( = 0.002), and guidance ( = 0.014) significantly increased from pre- to post-test. POM is an effective social media-based intervention for PPCGs. Future research should assess the effectiveness of this intervention in populations with differing demographics and its effect on other psychosocial indicators.

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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC8241342PMC
http://dx.doi.org/10.1089/pmr.2020.0046DOI Listing

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