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Background: Patient engagement is recognized as a method to improve care quality and safety. A research team developed WeCares (Willingness to Engage in Your Care and Safety), a survey instrument assessing patients' and families' engagement in the safety of their care during their hospital stay. The objective of this study is to establish the preliminary construct validity and internal consistency of WeCares.
Methods: WeCares was distributed to patients and families. With the survey responses, exploratory factor analysis (EFA) was performed to identify the factorial structure of WeCares. The internal consistency was assessed using Cronbach's alpha. Descriptive and comparative analysis was also performed to summarize patients' and families' responses.
Results: A total of 247 patients and families responded to the WeCare survey, of which 224 were used for EFA. EFA resulted in a 13-item, four-factor structure, including (1) comfortable sharing concerns, (2) responsibility for preventing errors, (3) perception of care team members' attitude, and (4) patients'/families' role in preventing errors. The Cronbach alphas were 0.716-0.866, indicating acceptable internal consistency. Overall, patients and families were comfortable sharing concerns with clinicians but preferred to remain anonymous. They believed that the care team members hold most responsibility for error prevention, however, and agreed on their ability to help prevent errors.
Conclusion: WeCares was developed to assess patients' and families' willingness to engage. WeCares can also be used to facilitate conversation about safety concerns and shared responsibility. The study team believes this would lead to patient activation in guarding their own care and ultimately improve patient outcomes and safety.
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http://www.ncbi.nlm.nih.gov/pmc/articles/PMC9472245 | PMC |
http://dx.doi.org/10.1016/j.jcjq.2020.07.002 | DOI Listing |
BMC Prim Care
September 2025
Department of Family Medicine and General Practice, Karolinska Institute, Institution of Neurobiology, Car Sciences, and Society, Alfred Nobel's Allé 23, Huddinge, 141 83, Sweden.
BMC Prim Care
September 2025
Department of Public Health and Caring Sciences, Uppsala University, BMC, Box 564, Uppsala, 751 22, Sweden.
Background: The Swedish Child Healthcare services (CHS) includes team-based visits. Team-based visits are defined as physical meetings where different professionals, including the child and his or her parents, participate at the same time at the same place. This study aimed to explore healthcare professionals' experiences of these visits to better understand the opportunities and difficulties in meeting the unique needs of children and their families through team-based visits.
View Article and Find Full Text PDFInt J Emerg Med
September 2025
Family Medicine Department, Faculty of Medicine, King Abdulaziz University, Jeddah, Saudi Arabia.
Background: Acute necrotizing encephalopathy is a rare but severe neurological disorder characterized by rapid onset of fever, altered mental status, seizures, and multifocal brain lesions, particularly involving the thalami and brainstem. Often triggered by viral infections, its pathogenesis involves a hyperinflammatory response, resulting in blood-brain barrier disruption and necrosis of neural tissue. While influenza and herpesviruses are common etiological agents, adenovirus is a less frequently reported cause.
View Article and Find Full Text PDFBreast Cancer Res
September 2025
Department of Immunology, Genetics and Pathology, Uppsala University, Uppsala, Sweden.
Background: Polygenic risk scores (PRS) are not yet standard in clinical risk assessments for familial breast cancer in Sweden. This study evaluated the distribution and impact of an established PRS (PRS) in women undergoing clinical sequencing for hereditary breast cancer.
Findings: We integrated PRS into a hereditary breast cancer gene panel used in clinical practice and calculated scores for 262 women.
BMC Health Serv Res
September 2025
Comprehensive Cancer Center (CCC Munich LMU), LMU Hospital, München, Germany.
Background: The Comprehensive Cancer Center Munich has established a central contact point for cancer patients and their caregivers, which is associated with a multidisciplinary supportive care center. The platform facilitates multifaceted enquiries about access to supportive care, second opinions and specialist care. The aim of this study was to investigate the utilization of the contact platform during a period of 31 months.
View Article and Find Full Text PDF