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http://dx.doi.org/10.1038/s41431-019-0525-z | DOI Listing |
Eur J Hum Genet
February 2020
Clinical Genetics Department, Guy's & St Thomas' NHS Foundation Trust, London, United Kingdom.
Eur J Hum Genet
June 2015
1] Institute for Health Economics and Health Care Management, Helmholtz Zentrum München, German Research Center for Environmental Health (GmbH), Neuherberg, Germany [2] Institute and Outpatient Clinic for Occupational, Social and Environmental Medicine, Clinical Center, Ludwig Maximilians Universit
Given the cost constraints of the European health-care systems, criteria are needed to decide which genetic services to fund from the public budgets, if not all can be covered. To ensure that high-priority services are available equitably within and across the European countries, a shared set of prioritization criteria would be desirable. A decision process following the accountability for reasonableness framework was undertaken, including a multidisciplinary EuroGentest/PPPC-ESHG workshop to develop shared prioritization criteria.
View Article and Find Full Text PDFEur J Hum Genet
June 2009
Research Fund Flanders, Centre for Biomedical Ethics and Law, Faculty of Medicine, Katholieke Universiteit Leuven, Leuven, Belgium.
Although various guidelines and position papers have discussed, in the past, the ethical aspects of genetic testing in asymptomatic minors, the European Society of Human Genetics had not earlier endorsed any set of guidelines exclusively focused on this issue. This paper has served as a background document in preparation of the development of the policy recommendations of the Public and Professional Committee of the European Society of Human Genetics. This background paper first discusses some general considerations with regard to the provision of genetic tests to minors.
View Article and Find Full Text PDFDue to an oversight, no page numbers were given to the ESHG Public and Professional Policy Committee report, published in European Journal of Human Genetics volume 8, number 9. This has led to several enquiries by our readership on how to refer to the report. As a service to our readers, it was decided to republish the report in this issue, with proper page numbers assigned.
View Article and Find Full Text PDF