Category Ranking

98%

Total Visits

921

Avg Visit Duration

2 minutes

Citations

20

Article Abstract

Download full-text PDF

Source
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6974591PMC
http://dx.doi.org/10.1038/s41431-019-0525-zDOI Listing

Publication Analysis

Top Keywords

eshg pppc
4
pppc comments
4
comments postmortem
4
postmortem genetic
4
genetic data
4
data purposes
4
eshg
1
comments
1
postmortem
1
genetic
1

Similar Publications

Points to consider for prioritizing clinical genetic testing services: a European consensus process oriented at accountability for reasonableness.

Eur J Hum Genet

June 2015

1] Institute for Health Economics and Health Care Management, Helmholtz Zentrum München, German Research Center for Environmental Health (GmbH), Neuherberg, Germany [2] Institute and Outpatient Clinic for Occupational, Social and Environmental Medicine, Clinical Center, Ludwig Maximilians Universit

Given the cost constraints of the European health-care systems, criteria are needed to decide which genetic services to fund from the public budgets, if not all can be covered. To ensure that high-priority services are available equitably within and across the European countries, a shared set of prioritization criteria would be desirable. A decision process following the accountability for reasonableness framework was undertaken, including a multidisciplinary EuroGentest/PPPC-ESHG workshop to develop shared prioritization criteria.

View Article and Find Full Text PDF

Although various guidelines and position papers have discussed, in the past, the ethical aspects of genetic testing in asymptomatic minors, the European Society of Human Genetics had not earlier endorsed any set of guidelines exclusively focused on this issue. This paper has served as a background document in preparation of the development of the policy recommendations of the Public and Professional Committee of the European Society of Human Genetics. This background paper first discusses some general considerations with regard to the provision of genetic tests to minors.

View Article and Find Full Text PDF

Due to an oversight, no page numbers were given to the ESHG Public and Professional Policy Committee report, published in European Journal of Human Genetics volume 8, number 9. This has led to several enquiries by our readership on how to refer to the report. As a service to our readers, it was decided to republish the report in this issue, with proper page numbers assigned.

View Article and Find Full Text PDF