98%
921
2 minutes
20
Community partners and stakeholders currently engaged in community partnered participatory research (CPPR) can provide personal and professional insight into the processes and outcomes surrounding the CPPR model. This insight may indicate alternative solutions or methods of care delivery that can improve the model and existing interventions. We conducted in-person and phone interviews with five community partners who are currently involved in CPPR. The interviews were audio- and video-recorded, transcribed, and major themes identified. Interviewees recounted their experiences with CPPR and reported various levels of personal (ie, behavioral) and professional growth as a result of their involvement. Interviewees also indicated that CPPR can highlight various aspects of existing interventions (eg, leadership structure, stakeholder representation, methods of provider-to-patient communication, and provision of resources) that may benefit from re-evaluation. Engagement in CPPR may offer various personal and professional benefits for individuals (ie, community partners) involved in stages of development, implementation, and dissemination. The benefits affect these individuals in several ways, from personal growth (eg, emotional maturity, behavioral progress, increased familial resiliency) to professional growth (eg, progression of one's career/role/responsibilities, organizational growth, learned skills). These maturations have secondary effects (eg, increased community resilience, strengthened relationships, community-based mentorships) impacting the communities in which these community partners serve.
Download full-text PDF |
Source |
---|---|
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC6128343 | PMC |
http://dx.doi.org/10.18865/ed.28.S2.311 | DOI Listing |
Public Health Genomics
September 2025
Introduction Deliberative democracy is an inclusionary approach to reaching consensus decision-making through participative and representative engagement. The Democratizing Education for Sickle Cell Disease Gene Therapy Project used a deliberative community engagement model to partner with patient advocacy and research community members within the field of sickle cell disease (SCD) gene therapy to create new, accessible patient education materials (PEMs) about SCD gene therapy. Objective Develop PEMs for sickle cell disease gene therapy and study the process of deliberative community engaged research Methods A study of the experiences of a multi-disciplinary group of participants including patients, patient advocates, health professionals, gene therapy researchers, industry and government members using a deliberative community engagement model to develop new PEMs.
View Article and Find Full Text PDFJMIR Public Health Surveill
September 2025
Department of Psychiatry and Biobehavioral Sciences, David Geffen School of Medicine, University of California, Los Angeles, Los Angeles, United States.
Background: In recent years, social media has emerged as a pivotal tool in implementation science efforts to address the HIV epidemic. Engaging community partners is essential to ensure the successful and equitable implementation of social media strategies. There is a notable lack of scholarship addressing the operational considerations for studies using social media strategies in community-partnered HIV research.
View Article and Find Full Text PDFPLOS Glob Public Health
September 2025
Division of Infectious Disease and Global Public Health, Department of Medicine, Center on Gender Equity and Health, University of California San Diego, La Jolla, California, United States of America.
Reproductive coercion (RC) and intimate partner violence (IPV) are prevalent in Kenya and undermine women's reproductive agency; community-based women's groups may offer an opportunity to address these issues. We quantitatively examined women's participation in women-only self-help groups, described discussions of RC within these groups, and assessed differences based on prior experiences of RC and IPV among a clinic-based sample of Kenyan women seeking family planning services to inform future programming. Data were collected from 659 women of reproductive age seeking family planning services at six private clinics in Nairobi as part of the baseline for an intervention to address RC and IPV within family planning counseling.
View Article and Find Full Text PDFPLoS One
September 2025
Department of Pediatrics and Child Health Nursing, School of Nursing, College of Medicine and Health Sciences, University of Gondar, Gondar, Ethiopia.
Background: Sexually transmitted infections (STIs) remain a major public health threats in sub-Saharan Africa (SSA). Delay in seeking care is a significant barrier for the prevention and control of STIs. This study aimed to assess the proportion of women seeking STI-related care and its determinants in SSA.
View Article and Find Full Text PDFProc Natl Acad Sci U S A
September 2025
PandemiX - Center for Interdisciplinary Study of Pandemic Signatures, Copenhagen 2300, Denmark.
We analyzed the patterns of transmission in the 2022 clade IIb mpox epidemic as it unfolded in the European population of men who have sex with men (MSM). We developed an agent-based model that simulates sexual pair formation, incorporating both brief and longer-term sexual relationships. The model implements survey data on the sexual behavior of MSM and accounts for the highly heterogeneous nature of the sexual contact network within this community.
View Article and Find Full Text PDF