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Background: African Americans are under-represented in research, and there are perceptions of unwillingness among African Americans to participate in research. We explored barriers to African American research participation.
Methods: We conducted a cross-sectional survey to explore knowledge and beliefs regarding medical and genetic research among adults (n = 169) at urban community events. Descriptive data were summarized by frequencies for survey responses.
Results: Only 13 % of respondents had ever been approached for research; 93 % of those who had been approached for research had participated. Eighty-six percent of those who had previous research experience indicated willingness to participate again vs. only 30 % among those with no research experience. Seventy-four percent had altruistic views of research; 28 % were concerned about truthfulness of researchers; 52 % feared incidental discoveries.
Conclusion: African Americans have favorable views of research; however, few are being engaged in studies. Effective interventions to address identified barriers may improve participation and lead to better health outcomes among African Americans.
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http://dx.doi.org/10.1007/s40615-016-0277-1 | DOI Listing |
Alzheimers Dement
September 2025
Department of Neurology, University of Michigan, Ann Arbor, Michigan, USA.
Introduction: Mild cognitive impairment (MCI) represents a transitional stage between normal aging and dementia. We investigate associations among cardiovascular and metabolic disorders (hypertension, diabetes mellitus, and hyperlipidemia) and diagnosis (normal; amnestic [aMCI]; and non-amnestic [naMCI]).
Methods: Multinomial logistic regressions of participant data (N = 8737; age = 70.
J Natl Med Assoc
September 2025
College of Medicine, 520W St NW, WA DC 20059, USA.
Background: Non-Hispanic African Americans were reported to have a higher rate of heat-related death than non-Hispanic whites. It is not known whether this racial disparity varies among US regions.
Methods: Multiple cause of death data were used to tabulate heat-related death records which listed ICD-10 codes X30 (exposure to excessive natural heat), P81.
J Natl Med Assoc
September 2025
Communication Equity Outcomes Laboratory, Department of Speech, Language and Hearing Sciences, University of Florida, Gainesville, FL, United States.
Importance: Significant advancements have been made in the management of sickle cell disease (SCD); an inherited blood disorder most prevalent among African Americans. While chronic pain is a hallmark of SCD and has been the primary focus of treatment, contemporary literature highlights the potential presence of developmental issues related to speech, language, neurocognitive, and auditory abilities that are often overlooked in SCD management.
Observations: This paper explores the spectrum of communication-related challenges that specifically affect children with SCD and fall within the scope of practice for speech-language pathologists (SLPs) and audiologists (AUDs).
Am J Speech Lang Pathol
September 2025
Faculty of Health Sciences, School of Rehabilitation Science, McMaster University, Hamilton, Ontario, Canada.
Introduction: The prevalence of dysphagia has been increasing over the years, with some individuals at a greater risk. Social determinants of health (SDOH) can affect some individual's access to care and their health more than others. The objective of this study is to explore the role of SDOH on self-reported dysphagia in older adults (aged 65 years and older) living in the United States.
View Article and Find Full Text PDFBreast Cancer Res Treat
September 2025
Department of Oncology, Wayne State University School of Medicine, Detroit, MI, USA.
Purpose: Black women with hormone receptor-positive (HR +) breast cancer are twice as likely as White women to have weakly HR + tumors (1-10% positive cells). Patients with weakly HR + tumors are less frequently prescribed ET and have 60% higher mortality than strongly HR + tumors (> 10% positive cells). We evaluated factors associated with ET prescription and self-reported use among Black women with HR + breast cancer.
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