Category Ranking

98%

Total Visits

921

Avg Visit Duration

2 minutes

Citations

20

Article Abstract

In 2001, the Institute of Medicine identified healthcare transparency as a necessity for re-designing a quality healthcare system; however, despite widespread calls for publicly available transparent data, the goal remains elusive. The transparent reporting of outcome data and the results of congenital heart surgery is critical to inform patients and families who have both the wish and the ability to choose where care is provided. Indeed, in an era where data and means of communication of data have never been easier, the paucity of transparent data reporting is paradoxical. We describe the development of a quality dashboard used to inform staff, patients, and families about the outcomes of congenital heart surgery at the Stollery Children's Hospital.

Download full-text PDF

Source
http://dx.doi.org/10.1017/S1047951115002085DOI Listing

Publication Analysis

Top Keywords

congenital heart
12
quality dashboard
8
transparent reporting
8
transparent data
8
heart surgery
8
patients families
8
data
5
development congenital
4
heart programme
4
programme quality
4

Similar Publications

Fetal 4D Flow CMR for Advanced Diagnostics of Congenital Heart Disease: A Prospective Cohort Study.

Eur Heart J Cardiovasc Imaging

September 2025

Department of Diagnostic and Interventional Radiology, University Hospital Bonn, Venusberg-Campus 1, 53127, Bonn, Germany.

Aims: Fetal circulation undergoes complex changes in congenital heart disease (CHD) that are challenging to assess with fetal echocardiography. This study aimed to assess clinical feasibility and diagnostic value of 4D flow cardiac magnetic resonance (CMR) in fetal CHD.

Methods And Results: Pregnant women in advanced third trimester pregnancy with fetal CHD were prospectively recruited for fetal CMR between 08/2021 and 11/2024.

View Article and Find Full Text PDF

Pericardial effusion (PCE) represents a significant postoperative complication following congenital heart surgery (CHS), contributing to more complex postoperative care and heightened morbidity. In this study, we aim to elucidate the risk factors contributing to PCE development post-CHS through analysis of data from a nationwide, multi-institutional database. Review of the Pediatric Health Information System Database from January 1, 2004, to December 30, 2023.

View Article and Find Full Text PDF

This analysis evaluates the longitudinal impact of extracorporeal membrane oxygenation (ECMO) and ventricular assist device (VAD) on the progression of motor delay and cognitive delay in pediatric heart transplant recipients. The United Network for Organ Sharing Registry was queried for pediatric patients (<18 years) who received a heart transplant between 2008 and 2022 and were bridged-to-transplantation with either ECMO or VAD. Patients were further stratified based on the progression of delay status pretransplant to post-transplant.

View Article and Find Full Text PDF

BackgroundChylothorax, the accumulation of triglyceride-rich fluid in the pleural cavity, is a well-recognized complication after surgery for congenital heart disease in children. Treatment protocols and role of surgery are not standardized.ObjectiveThis study aims to evaluate the outcomes of a standardized technique of thoracoscopic ligation of the thoracic duct (TLTD), for the management of persistent chylothorax following pediatric cardiac surgery.

View Article and Find Full Text PDF

Right ventricular (RV) failure is the primary cause of death among patients with pulmonary arterial hypertension (PAH). Patients with congenital heart disease-associated PAH (CHD-PAH) demonstrate improved outcomes compared to patients with other forms of PAH, which is related to the maintenance of an adaptively hypertrophied RV. In an ovine model of CHD-PAH, we aimed to elucidate the cellular, microvascular, and transcriptional adaptations to congenital pressure overload that support RV function.

View Article and Find Full Text PDF