Publications by authors named "Shannon B Juengst"

Objectives: Identify risk factors for profiles of caregiver burden, depression, and social disconnectedness among Alzheimer's disease and related dementias (ADRD) care partners.

Methods: Latent Profile Analysis of baseline caregiver burden, depressive symptoms, and social disconnectedness among 95 ADRD care partners enrolled in a problem-solving intervention clinical trial. Multivariable linear regressions determined risk factors associated with these profiles.

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Purpose/objective: This study aimed to determine the relationship of participation dimensions with satisfaction with social roles and activities after traumatic brain injury (TBI).

Research Method/design: Secondary analysis of baseline data from 127 participants enrolled in the MoodTracker intervention trial (https://ClinicalTrials.gov Identifier NCT04410770).

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Biopsychosocial and environmental factors play a major role in acute clinical presentation, recovery, and outcome of traumatic brain injury (TBI). As part of the 2024 National Institute of Neurological Disorders and Stroke (NINDS) TBI Classification and Nomenclature Initiative, the Psychosocial and Environmental Modifiers (PEM) Working Group was assembled to perform a narrative review and summary of expert opinions regarding how non-TBI factors influence the presenting features and outcomes of TBI and to make recommendations for incorporating these Modifiers into clinical care and research. With input from working group members and other interested parties, we summarize the membership, methods, and outcomes of the PEM Working Group activities.

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Objective: To examine the interaction of race/ethnicity and sex on societal participation (productivity and overall participation) among individuals with traumatic brain injury (TBI).

Setting: Community.

Participants: A total of 8861 individuals aged ≥16 who identified as non-Hispanic White (1750 females, 4270 males), non-Hispanic Black (315 females, 1147 males), or Hispanic (314 females, 1065 males), and who completed a 1-year postinjury follow-up interview in the TBI Model Systems National Database.

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Objective: Qualitative evidence suggests that disability stigma is an important concept in the lived experiences of individuals with traumatic brain injury (TBI). However, there have been no studies in this population specifically evaluating internalized disability stigma. We sought to characterize variability in levels of internalized stigma and examine the applicability of the "why try" effect (reduced self-efficacy and life goal attainment as consequences of internalized stigma) to people living with chronic TBI.

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Objective: To evaluate crosswalks between the Continuity Assessment Record and Evaluation (CARE) measure and the FIM motor subscale scores in a sample of persons with traumatic brain injury given the CARE measure's development by the Centers for Medicare and Medicaid Services in 2005 to assess motor function in all postacute rehabilitation settings and its intended continuity with previous measures.

Design: Crosswalks were created using 3 methodologies (expert opinion, equipercentile, and Rasch). The dataset was split into training and validation datasets.

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Objective: Explore the relationship between tree canopy coverage (TCC) in one's home neighborhood and mental health outcomes, and how these relationships differ by home neighborhood factors, among persons with traumatic brain injury (TBI) in the United States.

Setting: Community.

Participants: Enrolled in the TBI Model Systems National Database with completed follow-up interview after January 1, 2017.

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Background: Research on older adults who sustain a traumatic brain injury (TBI) has predominantly been on civilian, nonveteran populations. Military populations experience higher rates of TBI and often experience the additive effects of TBI and other comorbid disorders, including posttraumatic stress disorder and/or substance use that may increase disability over time.

Objective: To investigate predictors of functional independence trajectories over the 5 years after TBI in veterans 55 years or older at injury.

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Traumatic brain injury (TBI) and subsequent post-traumatic epilepsy (PTE) often impair daily activities and mental health (MH), which contribute to long-term TBI-related disability. PTE also affects driving capacity, which impacts functional independence, community participation, and satisfaction with life (SWL). However, studies evaluating the collective impact of PTE on multidimensional outcomes are lacking.

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Article Synopsis
  • Researchers developed prediction models to estimate the risk of posttraumatic epilepsy (PTE) in individuals who experienced moderate-to-severe traumatic brain injuries (TBI) during a two-year recovery period.
  • The study utilized data from over 6,000 participants in the TBI Model Systems National Database, performing analyses to create models that account for various factors influencing seizure risk post-injury.
  • Key findings indicated that Model 3, which focused on predicting new or recurrent seizures in the second year, had the highest sensitivity (86.63%) and effectiveness, with factors like cranial surgeries and traumatic hemorrhages being significant risk predictors across all models.
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  • Adverse childhood experiences (ACEs) can increase the risk of experiencing adult traumatic brain injury (TBI) and affect recovery outcomes, but research on this is limited.
  • A study involving 85 individuals with chronic TBI examined the prevalence of both household (conventional) and community-level ACEs and found significant associations with mental health symptoms and overall quality of life.
  • The findings suggest that those with higher ACEs reported worse mental health and quality of life, highlighting the importance of considering ACEs in TBI treatment and research approaches.
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Objective: To examine risk factors associated with homeboundness 1-year after traumatic brain injury (TBI) and to explore associations between homebound status and risk of future mortality and nursing home entry.

Design: Secondary analysis of a longitudinal prospective cohort study.

Setting: TBI Model Systems centers.

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Objective: To evaluate the effectiveness of 2 interventions for caregivers of patients with acquired brain injury (ABI) transitioning home after inpatient rehabilitation, to prepare them for the role of caregiving and reduce stress and depression.

Design: Controlled trial with participants randomly assigned to (1) usual care (UC), (2) clinician-delivered Problem-Solving Training (PST), or (3) peer-led Building Better Caregivers (BBC) training; both experimental interventions initiated during the inpatient rehabilitation stay, delivered virtually, of similar intensity (six 60-minute sessions), and focused on managing stress and building skills related to caregiving.

Setting: Nonprofit rehabilitation hospital specializing in care of persons with acquired brain and spinal cord injuries.

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Article Synopsis
  • This study aimed to explore how cognitive changes following inpatient rehabilitation impact participation and life satisfaction one year later for individuals with traumatic brain injury (TBI).
  • The analysis included 499 participants from a larger dataset, focusing on their performance in cognitive assessments (BTACT) at discharge and one year post-injury.
  • Results indicated that while changes in episodic memory were linked to better participation and life satisfaction outcomes, changes in executive function did not show a significant association once controlled for other factors.
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Purpose/objective: Psychometric network analysis (PNA) is an application of dynamic systems theory that can inform measurement of complex rehabilitation phenomena such as depressive symptom patterns in veterans and service members (V/SMs) after traumatic brain injury (TBI). This study applied PNA to the Patient Health Questionnaire-9 (PHQ-9), a common measure of depressive symptoms, in a sample of V/SMs with TBI at Years 1 and 2 (Y1-2) postinjury.

Research Method/design: A sample of 808 V/SMs with TBI participated, 594 contributing PHQ-9 data at Y1 and 585 at Y2.

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Objective: To characterize the greatest problem or need among individuals with a history of traumatic brain injury (TBI), as compared with individuals with a history of other neurologic conditions, mental health conditions, and no history of neurologic or mental health conditions.

Design: A directed content analysis of open-text responses to a single online survey question using a framework guided by the Mayo-Portland Adaptability Inventory-4.

Setting: Community.

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Objective: To create a census-based composite neighborhood socioeconomic deprivation index (NSDI) from geocoded residential addresses and to quantify how NSDI aligns with individual-level socioeconomic factors among people with traumatic brain injury (TBI).

Setting: Community.

Participants: People enrolled in the TBI Model Systems National Database (TBIMS NDB).

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Purpose/objective: To examine the association of changes in homebound status (i.e., never/rarely leaving the home) with life satisfaction in the first 10 years after traumatic brain injury (TBI).

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Article Synopsis
  • The study aimed to understand personal, clinical, and environmental factors linked to four unique participation profiles in individuals with traumatic brain injury (TBI) one year or more post-injury.
  • Participants included 408 individuals from the TBI Model Systems who completed phone interviews about their experiences and backgrounds.
  • The analysis revealed key distinctions among the participation profiles based on factors like education, employment, community type, and cognitive function, highlighting trends in how these factors influence engagement in community activities.
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  • This report looks at how to help people with phantom limb pain and what they feel is missing in their treatment.
  • The study tests different ways to manage this pain, like medicines, surgeries, and unique therapies like mirror therapy and virtual reality.
  • Results show that teaching and involving patients early in their care can improve pain management, but there are still some challenges and things to work on for better treatment.
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Objective: This study investigates the association of nightmares beyond general sleep disturbance on neurobehavioral symptoms in adults with mild traumatic brain injury (mTBI).

Design: Secondary analysis of a concussion cohort study.

Participants: One hundred and eleven adults older than 20 years with mTBI were recruited from a specialized concussion treatment center.

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Purpose: To determine how life satisfaction changes across the first 10 years following traumatic brain injury (TBI).

Methods: Participants included 1,941 individuals from the TBI Model Systems database with life satisfaction data at 1-, 5-, and 10-years post-TBI. Based on Satisfaction With Life Scale scores, individuals were characterized as having one of the five 10-year life satisfaction trajectories: 'Stable High,' 'Stable Low,' 'Increased to High,' 'Decreased to Low,' and 'Unstable.

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