Cystic fibrosis (CF) newborn screening (NBS) results in earlier diagnosis of CF and better clinical outcomes. The goal of CF NBS is achievement of a timely, equitable diagnosis for all affected individuals. This article outlines CF NBS processes and algorithms, testing and clinical outcomes, and future needs.
View Article and Find Full Text PDFInt J Neonatal Screen
July 2025
An essential link in the cystic fibrosis (CF) newborn screening (NBS) process is communication of results. While this is described between NBS programs and primary care providers, data of this occurrence is limited with neonatologists. Neonatology providers represent a group caring for critically ill infants with conditions that can impact their ability to complete diagnostic testing after an abnormal NBS.
View Article and Find Full Text PDFRespir Med
December 2024
Background And Objectives: Children with severe persistent asthma managed by subspecialists represent a unique patient population. The factors predisposing these children to hospital admission are poorly understood. This study aimed to identify factors associated with future emergency department (ED) visits and hospitalization in this group.
View Article and Find Full Text PDFPediatr Qual Saf
December 2023
Introduction: Despite its importance in illness recovery, the sleep of hospitalized children is frequently interrupted. This quality improvement intervention aimed to reduce overnight room entries by minimizing unnecessary interventions.
Methods: This study occurred at a university-affiliated children's hospital on the hospital medicine services from March 26, 2021, to April 14, 2022.
Background And Objectives: Sleep is vital to recovery from illness, yet it is frequently interrupted in the hospital setting. Existing literature relying on survey data identifies vitals, medications, and pulse oximetry as major disruptors to sleep. This study was designed to assess the degree to which these candidate sleep disruptors are associated with objective room entries.
View Article and Find Full Text PDFAm J Perinatol
March 2024
Objective: The objective of this study was to identify factors associated with the cessation of human milk prior to neonatal intensive care unit (NICU) discharge for infants diagnosed with bronchopulmonary dysplasia (BPD).
Study Design: Participants were recruited from the Johns Hopkins BPD Clinic between January 2016 and October 2018. Clinical and demographic characteristics were analyzed based on whether participants stopped human milk before or after NICU discharge.