The experience of albinism in France: a qualitative study on dyads of parents and their adult child with albinism.

Background: To date, almost no research on the psychosocial implications of albinism has been conducted in France and an exploration of albinism-related experiences could be beneficial, in order to better understand this condition. The aim of this study was to examine how French people with albinism and their parents live with and adapt to this condition in all the areas of their lives.

Methods: Semi-structured phone interviews were conducted with 9 parent-child dyads, each participating separately.