Transdisciplinary care intervention for young adults with type 1 diabetes transitioning to adult healthcare: Rationale and trial design.

There is a critical need for efficacious interventions targeting the psychosocial and systems level barriers to successful healthcare transitions in young adults (YA) with type 1 diabetes (T1D). Transdisciplinary Care for Transition (TCT) is a novel intervention that involves conjoint delivery of T1D care by a diabetes nurse educator, social worker/transition navigator, and psychologist during the transition between pediatric and adult T1D healthcare settings. The TCT team will participate in cross discipline training, see YA jointly for three 60-min virtual visits, and collaborate in care delivery by integrating their respective knowledge and skills.

Delivering Care Consistent With the Psychosocial Standards-Provider Report: Implementing the Standards Together-Engaging Parents and Providers in Psychosocial Care (iSTEPPP) Study.

Background: Evidence-based Standards for Psychosocial Care for Children with Cancer and their Families were published in 2015. Determining how often care delivery practices and approaches align with the Standards is important for understanding the reach of the Standards.

Procedure: Medical (n = 73) and psychosocial (n = 99) providers from 129 of 197 (65%) Children's Oncology Group (COG) programs in the United States completed an online survey.

All in the Family: Modeling Associations Between Caregiver, Patient, and Sibling Adjustment in Families of Children With Heart Disease.

Background: Congenital heart disease (CHD) can erode parental mental health and hamper adjustment in children with CHD; however, associations between family members are poorly understood.

Objective: The aim of this study was to test a model of associations of adjustment among family members of children with CHD.

Methods: Structural equation modeling was used to model 47 parent-sibling dyads.

Family Psychosocial Risk, Neighborhood Opportunity, and Language in Pediatric Cancer.

Background: Psychosocial risk in pediatric cancer includes consideration of broader systems. The Psychosocial Assessment Tool (PAT) is a brief caregiver report screener of family psychosocial risk. Based on the Pediatric Psychosocial Preventative Health Model (PPPHM), scores are classified into tiers-Universal, Targeted, and Clinical.

Association Between Obesity-Related Health Factors and Patient-Reported Outcomes: Linking Patient-Reported Outcomes to PEDSnet Electronic Health Record Data.

While studies have described poorer health-related quality of life (HRQOL) among youth with obesity, less is known about health factors contributing to this perception. The study aims were to link patient-reported outcomes (PROs) data to electronic health record (EHR) data to describe the association between PROs and obesity-related health factors. Youth and parents of youth receiving care from weight management programs at eight PEDSnet sites completed PROMIS® measures assessing global health, fatigue, stress, and family relationships.

Benchmarks for Psychosocial Staffing in Pediatric Oncology: Implementing the Standards Together-Engaging Parents and Providers in Psychosocial Care (iSTEPPP) Study.

Background: The Standards for the Psychosocial Care of Children with Cancer and their Families (the Standards) support the provision of evidence-based psychosocial care across the pediatric cancer trajectory by specialized multidisciplinary staff. This paper presents data from the Implementing the Standards Together: Engaging Parents and Providers in Psychosocial care (iSTEPPP) study on the number and type of psychosocial staff at pediatric oncology programs in the United States in 2023, 8 years after the publication of the Standards.

Procedure: Up to two healthcare professionals from pediatric cancer programs in the United States participated in an online survey.

Topical review: family psychosocial risk screening and social determinants of health assessment.

Objective: Social-ecological factors are highly congruent with social determinants of health (SDOH): Economic Stability; Educational Access/Quality; Healthcare Access/Quality; Neighborhood/Built Environment; and Social/Community Context. In this topical review, the correspondence of social-ecological theory with SDOH and assessment approaches is reviewed. The Psychosocial Assessment Tool (PAT) is used to show how existing tools may facilitate SDOH screening.

Comparison of 2 Models of Care for Children With Medical Complexity Following Spinal Fusion.

We conducted a retrospective chart review of patients with neuromuscular scoliosis following spinal fusion surgery who were cared for post-operatively by either a hospitalist/orthopedics co-management team or a complex care clinic (CCC). Assignment to either treatment group was not random. To account for baseline differences between groups, we calculated propensity scores and used these as probability weights in generalized linear models.

The Psychosocial Impact of the COVID-19 Pandemic on Families of Youth of Color: A Prospective Cohort Study.

Objective: Prospectively examine racial and ethnic disparities in exposure to COVID-19-related stressors and their impact on families.

Methods: A racially, ethnically, and socioeconomically diverse cohort of caregivers of youth (n = 1,581) representative of the population served by a pediatric healthcare system completed the COVID-19 Exposure and Family Impact Scales in Oct/Nov 2020 and March/April 2021. Linear mixed-effects models were used to examine exposure to COVID-19-related events (Exposure), impact of the pandemic on family functioning and well-being (Impact), and child and parent distress (Distress) across time and as a function of race and ethnicity, adjusting for other sociodemographic variables.

Online Experiences, Internet-Fostered Connection, Resilience, and Adjustment Among Adolescent Siblings of Children With Cancer.

Background: Pediatric cancer disrupts the lives of siblings in many ways, including physical separations from family and friends that increase risk for distress. Research suggests that siblings use technology and social media to connect with friends and family and seek social support and interaction. However, this may expose siblings to negative online experiences that can erode self-esteem, reducing resilience.

Trajectories of Traumatic Stress Symptoms Among Siblings of Children With Cancer: The First Two Years Post-Diagnosis.

Objective: Identify and describe trajectories of cancer-related posttraumatic stress symptoms (PTSS) among siblings of children with cancer within two years of diagnosis.

Method: Siblings (aged 8-18; M = 11.2 years) across the United States, and for each, one caregiver, were recruited for a cohort sequential longitudinal study with three data collection points six months apart beginning at 6- or 12-months after cancer diagnosis.

The Electronic Surviving Cancer Competently Intervention Program-a Psychosocial Digital Health Intervention for English- and Spanish-Speaking Parents of Children With Cancer: Protocol for Randomized Controlled Trial.

Background: The psychosocial needs and risks of children with cancer and their families are well-documented including increased risk of parental distress, posttraumatic stress, and anxiety. There is a critical need to provide evidence-based psychosocial care to parents and caregivers of children with cancer. Digital health interventions are important to address many barriers to in-person intervention delivery but are not widely used in pediatric psychosocial cancer care.

Persistent Disparities in Pediatric Health Care Engagement During the COVID-19 Pandemic.

Objective: The COVID-19 pandemic has disrupted traditional health care, including pediatric health care. We described the impact of the pandemic on disparities in pediatric health care engagement.

Methods: Using a population-based cross-sectional time-series design, we compared monthly ambulatory care visit volume and completion rates (completed vs no-show and cancelled visits) among pediatric patients aged 0-21 years in 4 states in the mid-Atlantic United States during the first year of the COVID-19 pandemic (March 2020-February 2021) with the same period before the pandemic (March 2019-February 2020).

Association between recent methamphetamine use, antiretroviral therapy and HIV viral load; a mediation analysis from a cohort of HIV positive persons who inject drugs in Hai Phong, Vietnam.

Background: There has been a significant increase in methamphetamine use among persons who use drugs in Vietnam in the last 5-10 years. We examined the degree to which adherence to antiretroviral therapy (ART) mediates the relationship between recent methamphetamine use and unsuppressed HIV viral load among people who inject drugs (PWID) in Hai Phong, Vietnam.

Methods: We recruited PWID from October 2016-October 2018 and enrolled HIV positive PWID into a cohort, with up to three years of total follow-up.

Parental and Other Caregiver Loss Due to COVID-19 in the United States: Prevalence by Race, State, Relationship, and Child Age.

The more than one million COVID-19 deaths in the United States include parents, grandparents, and other caregivers for children. These losses can disrupt the social, emotional, and economic well-being of children, their families, and their communities, and understanding the number and characteristics of affected children is a critical step in responding. We estimate the number of children who lost a parent or other co-residing caregiver to COVID-19 in the U.

Acceptability and Feasibility of eSCCIP: Results From a Pilot Study of the Electronic Surviving Cancer Competently Intervention Program.

Background: Providing high-quality psychosocial care to parents and other primary caregivers of children with cancer (henceforth referred to as caregivers) is important, given the numerous challenges associated with a pediatric cancer diagnosis and the increased risk for negative psychosocial sequelae among caregivers. The Electronic Surviving Cancer Competently Intervention Program (eSCCIP) is a psychosocial eHealth intervention for caregivers, developed using an iterative, user-centered process.

Method: eSCCIP was tested in a single-arm pilot trial at Nemours Children's Hospital, Delaware (NCT05333601).

COVID-19 Exposure and Family Impact Scales for Adolescents and Young Adults.

Objective: To understand the impact of the coronavirus disease 2019 (COVID-19) pandemic on adolescents and young adults (AYAs), we adapted the COVID-19 Exposure and Family Impact Scales (CEFIS; Kazak et al., 2021) for AYAs. Here, we report on the development, structure, and psychometric properties of the CEFIS-AYA.

Using large-scale respondent driven sampling to monitor the end of an HIV epidemic among persons who inject drugs in Hai Phong, Viet Nam.

Aims: To describe the use of large-scale respondent driven sampling (RDS) surveys to demonstrate the "end of an HIV epidemic" (HIV incidence < 0.5/100 person-years) among persons who inject drugs (PWID) in a middle-income country. Large sample sizes are needed to convincingly demonstrate very low incidence rates.

The methamphetamine epidemic among persons who inject heroin in Hai Phong, Vietnam.

Aims: To describe the current methamphetamine (MA) use epidemic among persons who inject heroin (PWID) in Hai Phong, Vietnam, and consider possibilities for mitigating adverse effects of methamphetamine use.

Methods: This study conducted surveys of PWID in 2016, 2017, and 2018 (N = 1383, 1451, and 1445, respectively). Trained interviewers administered structured interviews covering drug use histories, current drug use, and related risk behaviors.

A Multistage Process Model of How a Person Who Currently Injects Drugs Comes to Assist Persons Who Do not Inject with Their First Injections.

Injecting drugs for the first time almost always requires assistance from an experienced person who injects drugs (PWID). While there has been moderate amount of research on PWID who assist with first injections, most of this research has focused on identifying characteristics of PWID who assist with first injections. We do not have a formal model that describes how the minority of PWID come to assist do so, while the majority never assist.

Ending an HIV epidemic among persons who inject drugs in a middle-income country: extremely low HIV incidence among persons who inject drugs in Hai Phong, Viet Nam.

Objective: To determine whether it is possible to 'end an HIV epidemic' among persons who inject drugs (PWID) in a low/middle income country.

Design: Serial cross-sectional surveys with a cohort of HIV seronegative participants with 6-month follow-up visits recruited from surveys.

Methods: Surveys of PWID using respondent driven and snowball sampling were conducted in 2016, 2017, 2018, and 2019 (N = 1383, 1451, 1444, and 1268).

Associations between methamphetamine use and lack of viral suppression among a cohort of HIV-positive persons who inject drugs in Hai Phong, Vietnam.

Objective: We assessed the association between methamphetamine use and lack of viral suppression among a cohort of HIV-seropositive persons who inject drugs (PWID) in Hai Phong, Vietnam.

Design: Cohort study with random effects logit modeling and mediation analysis for antiretroviral therapy (ART) adherence.

Methods: PWID were recruited from October 2016 to October 2017; HIV-seropositive PWID were enrolled in a cohort to assess HIV viral loads, changes in drug use, risk behaviors, and ART adherence during 24-month follow-up.

Prevalence of Comorbidities and Risks Associated with COVID-19 Among Black and Hispanic Populations in New York City: an Examination of the 2018 New York City Community Health Survey.

Background: The coronavirus disease (COVID-19) pandemic has affected Blacks and Hispanics in New York City (NYC) disproportionately. This study aims to assess the relationship of race/ethnicity with COVID-19 associated factors such as hypertension, diabetes, neighborhood poverty, and frontline work, in NYC.

Methods: The 2018 New York City Community Health Survey was used to examine the association of hypertension, diabetes, and neighborhood poverty level with race/ethnicity in log-binomial regression models.

Self-reported Hazardous Drinking, Hypertension, and Antihypertensive Treatment Among Hispanic Immigrants in the US National Health Interview Survey, 2016-2018.

Compared to the US-born population, Hispanic immigrants are reported to have lower age-adjusted prevalence of hypertension. However, country of origin, race/ethnicity, and risk behaviors associated with acculturation, including hazardous drinking, can affect the prevalence of hypertension. Additionally, health disparities across immigration/nativity status may be associated with suboptimal antihypertensive treatment and control of hypertension.