Transdisciplinary care intervention for young adults with type 1 diabetes transitioning to adult healthcare: Rationale and trial design.

There is a critical need for efficacious interventions targeting the psychosocial and systems level barriers to successful healthcare transitions in young adults (YA) with type 1 diabetes (T1D). Transdisciplinary Care for Transition (TCT) is a novel intervention that involves conjoint delivery of T1D care by a diabetes nurse educator, social worker/transition navigator, and psychologist during the transition between pediatric and adult T1D healthcare settings. The TCT team will participate in cross discipline training, see YA jointly for three 60-min virtual visits, and collaborate in care delivery by integrating their respective knowledge and skills.

Delivering Care Consistent With the Psychosocial Standards-Provider Report: Implementing the Standards Together-Engaging Parents and Providers in Psychosocial Care (iSTEPPP) Study.

Background: Evidence-based Standards for Psychosocial Care for Children with Cancer and their Families were published in 2015. Determining how often care delivery practices and approaches align with the Standards is important for understanding the reach of the Standards.

Procedure: Medical (n = 73) and psychosocial (n = 99) providers from 129 of 197 (65%) Children's Oncology Group (COG) programs in the United States completed an online survey.

All in the Family: Modeling Associations Between Caregiver, Patient, and Sibling Adjustment in Families of Children With Heart Disease.

Background: Congenital heart disease (CHD) can erode parental mental health and hamper adjustment in children with CHD; however, associations between family members are poorly understood.

Objective: The aim of this study was to test a model of associations of adjustment among family members of children with CHD.

Methods: Structural equation modeling was used to model 47 parent-sibling dyads.

Family Psychosocial Risk, Neighborhood Opportunity, and Language in Pediatric Cancer.

Background: Psychosocial risk in pediatric cancer includes consideration of broader systems. The Psychosocial Assessment Tool (PAT) is a brief caregiver report screener of family psychosocial risk. Based on the Pediatric Psychosocial Preventative Health Model (PPPHM), scores are classified into tiers-Universal, Targeted, and Clinical.

Association Between Obesity-Related Health Factors and Patient-Reported Outcomes: Linking Patient-Reported Outcomes to PEDSnet Electronic Health Record Data.

While studies have described poorer health-related quality of life (HRQOL) among youth with obesity, less is known about health factors contributing to this perception. The study aims were to link patient-reported outcomes (PROs) data to electronic health record (EHR) data to describe the association between PROs and obesity-related health factors. Youth and parents of youth receiving care from weight management programs at eight PEDSnet sites completed PROMIS® measures assessing global health, fatigue, stress, and family relationships.