The Multidimensional Assessment of Parenting Scale: Youth Report Form in Inpatient and Partial Hospital Settings.

The Multidimensional Assessment of Parenting Scale (MAPS) was developed to assess a wide range of behaviors across positive and negative domains of parenting. This study aims to expand the utility of the MAPS by evaluating a youth-report version which provides an additional perspective on parenting practices. The study evaluated the youth-report form of the MAPS (MAPS-Y) in a large clinical population ( = 628) ranging from middle childhood (8-12) to adolescence (13-17) who were admitted to partial and inpatient psychiatric units.

Surveying Child and Adolescent Inpatient Psychiatric Units: Demographics, Policies, and Practice.

Background: The increasing demand for acute inpatient psychiatric unit (IPU) treatment for children and adolescents in recent years has put significant pressure on hospital systems to provide efficient and effective care. However, there is a gap in the literature regarding the characteristics of IPU care for children and adolescents in the US, making it difficult for institutions to benchmark their performance against nationwide standards or understand generalizability of existing research.

Objective: To address this gap in the literature by beginning to collect descriptive data on significant variables for youth care from a geographically and institutionally diverse group of on Child and Adolescent IPUs.

Managed Long-Term Services and Supports and Caregiving Among Dually Enrolled Older Adults.

Importance: Managed Long-Term Services and Supports (MLTSS) has been implemented by more than half of all state Medicaid programs, but knowledge of its scope and consequences for caregiving is limited.

Objective: To describe observed trends in MLTSS program presence and care hours among older adults dually enrolled in Medicare and Medicaid between 2012 and 2022.

Design, Setting, And Participants: This repeated cross-sectional study used data from the 2012-2022 National Health and Aging Trends Study (NHATS) linked with county-level measures of MLTSS program presence.

Mortality and hospitalization among older caregivers: Results from the Atherosclerosis Risk in Communities Study.

Background: Few studies have comprehensively examined health outcomes among older caregivers. We aimed to describe older caregivers and characterize risks for mortality and hospitalization compared to non-caregivers.

Methods: Caregiving status and characteristics were determined for Atherosclerosis Risk in Communities (ARIC) Study participants via a one-time telephone assessment in 2015.

Asking Older Adults With Impaired Cognition and Care Partners About Serious Illness Experiences Can Elicit Goals of Care During Advance Care Planning.

BackgroundSerious illness experiences, i.e. experiencing critical illness personally or through close ones, often influence end-of-life goals of care.

Measurement, drivers, and outcomes of patient-initiated secure messaging use and intensity: a scoping review.

Objective: Use of secure messaging through the patient portal has increased in recent years. We compile evidence of how patient-initiated secure messaging has been measured, factors associated with use, and effects on individual and organization-level outcomes.

Materials And Methods: We conducted a scoping review of articles published through October 2023 by systematically searching PubMed, Embase, and CINAHL.

Prevalence and Characteristics of Prehabilitation Utilization Among Older Medicare Beneficiaries Undergoing Elective Inpatient Lower Extremity Joint Replacement.

Objectives: To characterize trends and characteristics in individual receipt and facility delivery of preoperative rehabilitation ("prehabilitation") for lower extremity joint replacement (LEJR), and to characterize prehabilitation services delivered in terms of timing, frequency, duration, examining differences by preoperative frailty status and operative joint.

Design: Retrospective cohort study using administrative claims data.

Setting: Inpatient facilities conducting elective LEJR surgery for Medicare beneficiaries in the United States.

Family Caregiver Availability and Capacity Associated With Home Health Service Types for Patients With Dementia.

Objectives: To investigate the relationship between unmet needs for family caregiver support, defined as lack of caregiver availability or capacity, and home health care (HH) service types delivered to patients with dementia.

Design: Cross-sectional study of national claims and assessment data.

Setting And Participants: 325,148 older adults (aged ≥65 years) with diagnosed dementia receiving Medicare-funded HH in 2018.

Support for Care Economy Policies by Political Affiliation and Caregiving Responsibilities.

Importance: Identifying effective and financially viable strategies to meet the care needs of perons with impaired function is a policy challenge for high-income countries with aging populations. The 2022 National Strategy to Support Family Caregivers identified a range of actions to support caregivers, while family-oriented policies to promote the affordability of care were promoted by both candidates in the 2024 presidential election.

Objective: To examine public perceptions of federal policies to support older adults, adults living with disabilities, and their family caregivers by political affiliation and caregiving status.

Characterizing Adolescent Social Media Experiences and Links to Momentary Affect.

Introduction: Social media (SM) use is ubiquitous among adolescents, and questions remain regarding the impact of SM on youths' emotional health. Understanding what adolescents are experiencing on SM is critical for answering these questions.

Methods: The present study uses ecological momentary assessment (EMA) to characterize SM experiences (SMEs) over 15 days in 94 U.

Dementia Severity Associated With Unmet Caregiving Needs During Skilled Home Health Care.

One-third of home health care (HHC) patients have dementia. Despite the critical role of caregivers for this population, little is known regarding prevalence or risk factors for unmet caregiving needs during HHC. We examined 426,608 older (65+) HHC patients with dementia in 2018.

Users' perspectives on a demonstration to increase shared access to older adults' patient portals.

Background: Many patient portals allow patients to authorize a care partner to use the portal on their behalf, with evidence suggesting a range of benefits to patients, care partners, and clinicians. Shared or proxy access aligns with patient- and family-centered care and supports care partners' legitimacy and identification by clinicians in patient portal interactions. As shared access uptake remains low, the Coalition for Care Partners ( https://coalitionforcarepartners.

"It's Usually Not Dementia That's the Focus": Barriers and Facilitators of Dementia Care in Primary Care.

Background: Primary care provides most dementia care, yet providing high-quality dementia care within this setting remains a challenge. Medicare and health system initiatives create opportunities to improve quality of dementia care.

Objective: To evaluate barriers and facilitators of high-quality dementia care in primary care with a secondary focus on interdisciplinary team-based primary care and health information technology.

Long-Term Care Services and Supports Needed for Successful Aging-in-Place: A Critical Review.

We summarize the state of the evidence on the long-term services and supports infrastructure to support aging-in-place. We find an extensive literature describing the importance of affordable medical and social services delivered in the home, support for family caregivers, and the role of technology for improving communication among patients, caregivers, and health care teams to support aging-in-place. We identify gaps in access to affordable services and an inadequate workforce prepared to support aging-in-place, raising concerns about meeting the future needs of our aging population.

A look at caregivers for community-living persons with dementia: Implications for the GUIDE model.

Introduction: Medicare's new Guiding an Improved Dementia Experience (GUIDE) model funds integrated dementia care and related caregiver supports for community-living persons with dementia (PwD). Caregiver strain is a factor in provider payment and performance.

Methods: We examined national survey data on community-living PwD and their caregivers to identify which caregivers would receive support under GUIDE and characterize caregiver strain and use of supportive services.

Subjective Cognitive Impairment (SCI) and Future Dementia Risk in the National Health and Aging Trends Study (NHATS) During 2012-2019.

BackgroundSubjective cognitive impairment (SCI), assessed in national surveys, offers potential for dementia monitoring and early detection. However, its causal link to dementia risk remains unclear.ObjectiveTo evaluate whether SCI causally affects dementia risk in U.

Identifying, Engaging, and Supporting Care Partners in Clinical Settings: Protocol for a Patient Portal-Based Intervention.

Background: In the United States, the landscape of unpaid care delivery is both challenging and complex, with millions of individuals undertaking the vital role of helping families (broadly defined) manage their health care and well-being. This includes 48 million caregivers of adults, 42 million of whom are caregivers of adults aged 50 years or older. These family care partners provide critical and often daily support for tasks such as dressing and bathing, as well as managing medications, medical equipment, appointments, and follow-up care plans.

Comparing acceptance of smoking cessation and smoke-free home intervention offers and associated factors among people with low income in the USA: baseline results of a randomised controlled trial.

Introduction: State tobacco quitlines are the most commonly available smoking cessation programmes; however, they have low reach and typically only enrol people who are ready to quit in the next 30 days. Expanding quitline services may increase the total number of people engaged in tobacco control efforts and the number who eventually quit. In this randomised controlled trial, we offered both arms a tobacco quitline intervention.

A Pilot Trial Evaluating Collaborative Healthcare Encounters With Caregivers: A Checklist-Based Intervention for Primary Care.

This pilot trial aimed to evaluate the feasibility, acceptability, and preliminary efficacy of Collaborative Healthcare Encounters with Caregivers (CHEC), a checklist-based intervention designed to enhance caregiver participation in older adults' primary care visits. = 52 older patient-caregiver dyads were randomized to CHEC ( = 28) or usual care ( = 24). Visits were audio-recorded and analyzed according to a standardized coding procedure.

A Multisite Demonstration of Shared Access to Older Adults' Patient Portals.

Importance: The patient portal has a growing role in health care. Many health systems have implemented shared access functionality in which patients may register a care partner with unique identity credentials to access their portal. Uptake of shared access has been limited.

Housing characteristics of low and moderate income older adults with and without disabilities.

Housing is relevant to quality-of-life for older adults with and without disabilities, particularly those with limited financial resources. Among 4,898 low- and moderate-income community-living National Health and Aging Trends Study respondents, we describe and examine differences in housing characteristics of older adults with (n = 2774) and without disability (n = 2124). Next, among those with disability (self-care, household-activity, or mobility limitations), we examine associations of housing characteristics with adverse consequences due to unmet care needs, including soiling oneself or having to stay inside.

The Number Of Family Caregivers Helping Older US Adults Increased From 18 Million To 24 Million, 2011-22.

The evolving composition and experiences of the family caregiver workforce have profound ramifications for public policy but are not well understood. Drawing on the linked National Health and Aging Trends Study and National Study of Caregiving, we found that the numbers of family caregivers providing help to older adults increased by nearly six million between 2011 and 2022, rising from 18.2 million to 24.

Aligning Medications With What Matters Most: Conversations Between Pharmacists, People With Dementia, and Care Partners.

Introduction: Successful deprescribing for people with dementia (PWD) depends on communication about medication-related priorities between PWD, care partners and clinicians. The objective of this study was to gain in-depth knowledge of how elicitation of PWD and care partner medication-related priorities during a deprescribing intervention shaped discussions with pharmacists about medications.

Methods: Qualitative analysis of audio-recorded interactions between pharmacists and patient-care partner dyads in a pilot study of a pharmacist-led deprescribing intervention for PWD in primary care.

Hospitalization outcomes among older adults living undiagnosed or unaware of dementia.

Introduction: Many persons with dementia are undiagnosed or unaware of dementia, which may affect hospitalization outcomes.

Methods: We evaluated differences in length of stay, days not at home, discharge destination, and 30-day readmissions over 1 year in 6296 older adults in the National Health and Aging Trends Study with linked Medicare claims. Multivariable-adjusted models compared outcomes across no dementia, undiagnosed dementia, unaware but diagnosed with dementia, and aware and diagnosed with dementia.

Developing archetypes for key roles in a pragmatic trial: implementing human-centered design to promote advance care planning in primary care.

Background: Archetypes are representations of a group of people with shared behaviors, attitudes, and characteristics. The design and use of archetypes have potential application to increase partnership and support when embedding and scaling interventions but methodological approaches have not been developed.

Objective: To describe the methodology of designing archetypes for use in a pragmatic trial of advance care planning in the primary care context, SHARING Choices ((NCT04819191).