Health Policies for Rare Disease Patients: A Scoping Review.

Objective: To identify and map the available evidence on the implementation of public health policies directed at individuals with rare diseases, and to compare the implementation of these health policies between Brazil and other countries.

Method: A scoping review guided by the PRISMA-ScR and JBI checklists. The search for articles was conducted in eight electronic databases, MEDLINE/Pubmed, Embase, Cochrane Library, Web of Science, Scopus, CINAHL, PsycINFO, and LILACS, using controlled descriptors, synonyms, and keywords combined with Boolean operators.

[Inter-subjectivity in the context of people with cystic fibrosis' family].

This is a qualitative investigation with a phenomenological approach, which aimed to reveal the inter-subjective processes in the context of the family in which there is a person who suffers from Cystic Fibrosis (CF). Fourteen families of CF carriers were interviewed. They were registered at the Paranaense Association of Cystic Fibrosis Care, and lived in the north and northwest regions of Paraná estate (PR), Brazil.