Publications by authors named "Gabriella Maggi"

: Psychological distress impacts 35-40% of cancer patients, significantly affecting their quality of life, treatment adherence, and relationships with healthcare professionals. Given this, there is a critical need to enhance nursing competencies to effectively monitor and address psychological distress. Previous studies have highlighted discrepancies in capabilities based on nurses' training status, emphasizing trained nurses' critical role in providing appropriate psycho-social referrals.

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: Women undergoing genetic counseling for hereditary breast cancer often experience a high emotional burden. Distress and stress in the initial phases of genetic counseling can be significant predictors of long-term psychological health, influencing quality of life and well-being. : This study aimed to evaluate the mediating role of psychophysical stress in the relationship of anxiety and depression with quality of life and well-being in women undergoing genetic counseling for BRCA1/2 mutations.

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Although patient narratives have been increasingly introduced in various fields of medicine, a standard method in clinical practice is still lacking. The objectives of this pilot study were to evaluate the feasibility and usefulness of a digital narrative diary integrated into the care pathway of patients with bone sarcoma and limb soft tissue sarcoma both from the patients' and the healthcare professionals' (HCPs) perspectives. A digital platform, DNMLAB, was designed to obtain guided narratives from patients during their pathway of care in compliance with confidentiality and data protection laws.

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Article Synopsis
  • Limited research has focused on how family cancer history and emotional factors like depression and anxiety impact individuals' perceptions of cancer risk and worries, prompting this study to investigate these relationships in women undergoing genetic counseling for breast/ovarian cancer.
  • The study surveyed 178 women, 52% of whom had existing cancer diagnoses, assessing their emotional distress, cancer-related worries, risk perception, and fears related to healthcare.
  • Results indicated that higher levels of depression and anxiety correlated with increased cancer-related worries and risk perception, with healthcare-related fears acting as a mediator; it was also found that a prior cancer diagnosis raised cancer worries but not risk perception, while having more family members with cancer influenced both outcomes.
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  • The study examines the psychological effects of the COVID-19 pandemic on cancer patients, specifically those with sarcoma, by comparing emotional distress and quality of life between patients diagnosed during the pandemic and the previous year.
  • It enrolled 114 patients, revealing that while most quality of life aspects were similar, the financial concerns and emotional distress levels were significantly worse in the COVID group, with 69.0% experiencing distress compared to 48.6% in the control group.
  • The findings highlight that patients diagnosed during the pandemic felt greater anxiety about their health and perceived a decline in the quality of their care, suggesting a need for targeted psychological support during such crises.
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Background: The COVID-19 pandemic led to a rapid reorganization of healthcare activities, leading to reduced access to clinics, interruption of screenings, and treatment schedule modifications in several cancer types. Few data are available on sarcomas. We analyzed COVID-19-related diagnostic delay in a sarcoma referral center in Italy.

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Background: Guidelines for the implementation of narrative medicine in clinical practice exist; however, in Italy, no standard methodology is currently available for the management of oncological patients. Since 2017, at the "Regina Elena" National Cancer Institute, studies using "digital narrative diaries" (DNMLAB platform) have been carried out; this article focuses on a pilot, uncontrolled, real-life study aiming to evaluate the utility of DNM integrated with the care pathway of patients with bone and limb soft tissue sarcomas.

Methods: Adult patients completed the diary during treatment or follow-up by writing their narrative guided by a set of narrative prompts.

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The aim of this study was to investigate symptoms, their variation over time and their relationship with quality of life (QoL)/psychological distress in sarcoma patients, as few data regarding QoL and psychological distress in this set of patients are currently available. A total of 188 sarcoma patients from an Italian referral center were involved. Symptoms and financial difficulties were evaluated with the European Organization for Research and Treatment of Cancer Quality of Life Questionnaire from the first treatment and over the follow-up period, up to 6 years.

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The high complexity of multimodality treatment frequently results in undertreatment of elderly sarcoma patients, and this may be one of the factors that influence their prognosis. We describe the real-life approach to a population of patients aged over 70 with both soft tissue (STS) and bone sarcomas (BS) followed by our Sarcoma Disease Management Team from 2012 to 2017. One-hundred and twenty-three patients with a median age of 77 years (range: 70-92) were identified.

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To investigate sarcoma patients' perception of quality of life and psychosocial distress across the different disease's stages.  Total 329 sarcoma patients were monitored from diagnosis up to a maximum of six consecutive follow-up visits. Functional status worsened over time with the lowest value after surgery and a full recovery not earlier than the second follow-up visit.

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Little is known about the cancer related fatigue (CRF) along cancer course and risk factors that could predict CRF development and persistence in breast cancer (BC) survivors. This prospective study detected incidence, timing of onset, duration of CRF, impact on QoL and psychological distress. Seventy-eight early BC patients, undergoing chemotherapy (CT) followed or not by hormonal therapy were assessed for QoL and psychological distress by EORTC QLQC30 and HADs questionnaires.

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Article Synopsis
  • The study aimed to identify factors influencing early withdrawal from oncogenetic counseling by comparing the psychological and personality traits of participants who completed counseling versus those who dropped out.
  • Analysis of self-report questionnaires from 112 attendees and 56 withdrawers revealed that those with fewer children, fewer cancer-affected relatives, and lower hypomanic scores were more likely to withdraw from counseling.
  • The findings suggest that patients need to recognize the importance of their own cancer risk management and that those lacking psychological energy may benefit from increased support throughout the counseling process.
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  • Oncogenetic counselling is often skipped by eligible individuals due to factors like risk perception, emotional distress, and lack of family support.
  • A study conducted in Italy surveyed 106 individuals who sought initial genetic counselling but didn't pursue follow-ups, revealing issues like emotional cohesion within families and a correlation between anxiety and perceived risk.
  • The main reasons for skipping counselling included viewing genetic testing as futile and struggling with the potential negative outcomes, highlighting the need for better family support and clearer communication about the benefits of early diagnosis.
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