[Assessment of patient needs to design a patient education program in systemic lupus erythematosus].

Purpose: The aim of this study was to collect information to design a patient education program (PEP) for patients with systemic lupus erythematosus (SLE), based as much as possible on their expectations.

Patients And Methods: Three different approaches were used for addressing patients' needs: 1) A questionnaire on their expectations in terms of a PEP was sent to the members of SLE associations and offered to patients at the French reference center for SLE, 2) A patients' focus group was conducted, and 3) After the teaching sessions, satisfaction questionnaires were also evaluated.

Results: The patients who answered the expectation questionnaire (n=422, women/men sex-ratio: 12.