Publications by authors named "Aurora Ninfa"

Background: Appropriate management of chronic oropharyngeal dysphagia (OD) requires a family-centred approach. However, limited information is available on the challenges and resources perceived by informal caregivers who assist individuals with chronic OD.

Aim: To investigate the daily challenges and resources reported by informal caregivers of persons with chronic OD, in order to identify critical aspects requiring implementation through healthcare services.

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Late radiation-associated dysphagia (late-RAD) remains a challenge in head and neck cancer (HNC) survivorship, despite advancements in treatment methods. Although Fiberoptic Endoscopic Evaluation of Swallowing (FEES) stands as the preferred diagnostic approach for oropharyngeal dysphagia assessment in the HNC population, current studies lack a FEES-derived swallowing parameter characterization and phenotypic classification within this specific cohort. This study sought to employ FEES-based assessment to characterize swallowing safety and efficacy profiles, identify distinct phenotypes in HNC patients suffering from late-RAD, and examine potential correlations between safety and efficacy parameters.

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Article Synopsis
  • The study explores the daily challenges and resources that individuals with chronic oropharyngeal dysphagia (OD) face, highlighting its importance in person-centered care, which is often overlooked in research.
  • In-depth interviews with 25 Italian adults suffering from OD due to cancer or neurodegenerative diseases revealed that challenges span physical, practical, and social areas, with many participants describing difficulties in care and healthcare access.
  • Participants utilized various coping strategies and leaned on personal strengths and support systems, with many reporting significant changes in their life perspectives due to their condition; the study emphasizes the need for future research to enhance tailored care and inform healthcare policies.
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Article Synopsis
  • Aging causes changes in the oral cavity that can affect chewing, swallowing, and oral health, increasing the risk of malnutrition in older adults, especially during major surgeries.
  • Oral health issues can lead to complications like infections after surgery, making it crucial to maintain good oral hygiene for proper recovery.
  • The article proposes an Integrated Oral Health Network for Orthopaedic Surgery (IOHN-OS), which focuses on pre-operative screenings, patient education, and tailored oral care to improve outcomes for older patients undergoing surgery.
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Several scales to assess pharyngeal residue in Fiberoptic Endoscopic Evaluation of Swallowing (FEES) are currently available. The study aimed to compare the reliability and the applicability in real clinical practice among four rating scales: the Pooling Score (P-SCORE), the Boston Residue and Clearance Scale (BRACS), the Yale Pharyngeal Residue Severity Rating Scale (YPRSRS), and the Residue Ordinal Rating Scale (RORS). Twenty-five FEES videos were evaluated four times, once for each scale, by four speech and language pathologists.

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This study aimed at investigating the change in social eating problems from diagnosis to 24 months after primary (chemo)radiotherapy and its associations with swallowing, oral function, and nutritional status, in addition to the clinical, personal, physical, psychological, social, and lifestyle dimensions. Adult patients from the NETherlands QUality of life and BIomedical Cohort (NET-QUBIC) treated with curative intent with primary (chemo)radiotherapy for newly-diagnosed HNC and who provided baseline social eating data were included. Social eating problems were measured at baseline and at 3-, 6-, 12-, and 24-month follow-up, with hypothesized associated variables at baseline and at 6 months.

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The Dysphagia Handicap Index (DHI) is a valid Health-related Quality of Life (HRQOL) questionnaire for patients with oropharyngeal dysphagia (OD) of heterogeneous etiologies. The study aimed at crossculturally translating and adapting the DHI into Italian (I-DHI) and analyzing I-DHI reliability, validity, and interpretability. The I-DHI was developed according to Beaton et al.

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Introduction: Besides affecting physical health, Oropharyngeal Dysphagia (OD) entails limitations in daily activities and social participation for both patients and their informal caregivers. The identification of OD-related needs is crucial for designing appropriate person-centered interventions.

Aims: To explore and map the literature investigating the care needs related to OD management of adult persons with OD and their informal caregivers during the last 20 years.

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The Functional Oral Intake Scale (FOIS) is a reliable and valid tool to assess functional oral intake of food and liquids in patients with oropharyngeal dysphagia (OD). Its validity was established for stroke patients against Videofluoroscopic Swallowing Study in English and Chinese and against Fiberoptic Endoscopic Evaluation of Swallowing (FEES) in German. FOIS was cross-culturally validated into Italian (FOIS-It), but construct validity against instrumental assessment and nutritional status was not investigated.

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